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Delivering Multidisciplinary Rehabilitation Care in Parkinson's Disease: An International Consensus Statement.
Goldman, Jennifer G; Volpe, Daniele; Ellis, Terry D; Hirsch, Mark A; Johnson, Julia; Wood, Julia; Aragon, Ana; Biundo, Roberta; Di Rocco, Alessandro; Kasman, Glenn S; Iansek, Robert; Miyasaki, Janis; McConvey, Victor M; Munneke, Marten; Pinto, Serge; St Clair, Karen A; Toledo, Santiago; York, Michele K; Todaro, Ronnie; Yarab, Nicole; Wallock, Kristin.
Affiliation
  • Goldman JG; JPG Enterprises LLC, Medical Division, Chicago, IL, USA.
  • Ellis TD; Fresco Parkinson Institute, Fiesole, Italy.
  • Hirsch MA; Fresco Parkinson Center Villa Margherita, S. Stefano Riabilitazione, Vicenza, Italy.
  • Johnson J; NYU Grossman School of Medicine, New York, NY, USA.
  • Wood J; Boston University Sargent College of Health and Rehabilitation Sciences, Boston, MA, USA.
  • Aragon A; Wake Forest School of Medicine, Winston-Salem, NC, USA.
  • Biundo R; Department of Physical Medicine and Rehabilitation, Carolinas Rehabilitation, Charlotte, NC, USA.
  • Di Rocco A; Kings College Hospital NHS Foundation Trust, London, UK.
  • Kasman GS; Lewy Body Dementia Association, Lilburn, GA, USA.
  • Iansek R; Independent Consultant Occupational Therapist, Bath, UK.
  • Miyasaki J; University of Padova, Padova, Italy.
  • McConvey VM; Northwell-Zucker School of Medicine, New York, NY, USA.
  • Munneke M; Patient Advocate/Care Partner, Anderson Island, WA, USA.
  • Pinto S; Monash University, Melbourne, VIC, Australia.
  • St Clair KA; University of Alberta, Alberta, Canada.
  • Toledo S; Fight Parkinson's, Melbourne, VIC, Australia.
  • York MK; Radboudumc Center of Expertise for Movement Disorders, Nijmegen, Netherlands.
  • Todaro R; The French National Centre for Scientific Research, Aix-Marseille University, Aix-en-Provence, France.
  • Yarab N; Patient Advocate/Care Partner, Santa Fe, NM, USA.
J Parkinsons Dis ; 14(1): 135-166, 2024.
Article in En | MEDLINE | ID: mdl-38277303
ABSTRACT

BACKGROUND:

Parkinson's disease (PD) is a complex neurodegenerative disorder impacting everyday function and quality of life. Rehabilitation plays a crucial role in improving symptoms, function, and quality of life and reducing disability, particularly given the lack of disease-modifying agents and limitations of medications and surgical therapies. However, rehabilitative care is under-recognized and under-utilized in PD and often only utilized in later disease stages, despite research and guidelines demonstrating its positive effects. Currently, there is a lack of consensus regarding fundamental topics related to rehabilitative services in PD.

OBJECTIVE:

The goal of the international Parkinson's Foundation Rehabilitation Medicine Task Force was to develop a consensus statement regarding the incorporation of rehabilitation in PD care.

METHODS:

The Task Force, comprised of international multidisciplinary experts in PD and rehabilitation and people directly affected by PD, met virtually to discuss topics such as rehabilitative services, existing therapy guidelines and rehabilitation literature in PD, and gaps and needs. A systematic, interactive, and iterative process was used to develop consensus-based statements on core components of PD rehabilitation and discipline-specific interventions.

RESULTS:

The expert-based consensus statement outlines key tenets of rehabilitative care including its multidisciplinary approach and discipline-specific guidance for occupational therapy, physical therapy, speech language pathology/therapy, and psychology/neuropsychology across all PD stages.

CONCLUSIONS:

Rehabilitative interventions should be an essential component in the comprehensive treatment of PD, from diagnosis to advanced disease. Greater education and awareness of the benefits of rehabilitative services for people with PD and their care partners, and further evidence-based and scientific study are encouraged.
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Parkinson Disease / Occupational Therapy / Disabled Persons Type of study: Guideline Aspects: Patient_preference Limits: Humans Language: En Journal: J Parkinsons Dis Year: 2024 Document type: Article Affiliation country:

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Parkinson Disease / Occupational Therapy / Disabled Persons Type of study: Guideline Aspects: Patient_preference Limits: Humans Language: En Journal: J Parkinsons Dis Year: 2024 Document type: Article Affiliation country:
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