Young Women's Perspectives on Being Screened for Hereditary Breast and Ovarian Cancer Risk During Routine Primary Care.
Womens Health Issues
; 34(3): 268-275, 2024.
Article
in En
| MEDLINE
| ID: mdl-38448251
ABSTRACT
PURPOSE:
The U.S. Preventive Services Task Force recommends screening women to identify individuals eligible for genetic counseling based on a priori hereditary breast and ovarian cancer syndrome (HBOC) risk (i.e., risk assessment). However, risk assessment has not been widely integrated into primary care. This qualitative study explored young women's views on implementing routine HBOC risk assessment with a focus on equity and patient-centeredness.METHODS:
We conducted group discussions with young women (aged 21-40 years) receiving care in an integrated health care system. Discussion groups occurred in two phases and used a modified deliberative approach that included a didactic component and prioritized developing consensus. Twenty women participated in one of three initial small group discussions (phase one). All 20 were invited to participate in a subsequent large group discussion (phase two), and 15 of them attended.FINDINGS:
Key themes and recommendations were as follows. Risk assessment should be accessible, contextualized, and destigmatized to encourage participation and reduce anxiety, particularly for women who do not know their family history. Providers conducting risk assessments must be equipped to address women's informational needs, relieve emotionality, and plan next steps after positive screens. Finally, to minimize differential screening uptake, health care systems must prioritize equity in program design and contribute to external educational and outreach efforts.CONCLUSION:
Young women see pragmatic opportunities for health systems to optimize HBOC screening implementation.
Full text:
1
Collection:
01-internacional
Database:
MEDLINE
Main subject:
Ovarian Neoplasms
/
Primary Health Care
/
Breast Neoplasms
/
Genetic Testing
/
Genetic Predisposition to Disease
/
Qualitative Research
/
Genetic Counseling
Limits:
Adult
/
Female
/
Humans
Language:
En
Journal:
Womens Health Issues
Journal subject:
GINECOLOGIA
/
OBSTETRICIA
/
SAUDE DA MULHER
Year:
2024
Document type:
Article