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[Translated article] Improvements in the Management of Patients With Generalized Pustular Psoriasis in Spain: Recommendations From a Group of Experts.
Rivera-Díaz, R; Carrascosa Carrillo, J M; Alfonso Zamora, S; Navarro Valdivieso, J P; Muñoz Cabello, B; Ros Abarca, S; Soria de Francisco, J M; Daudén Tello, E.
Affiliation
  • Rivera-Díaz R; Servicio de Dermatología, Hospital Universitario 12 de Octubre, Universidad Complutense, Madrid, Spain. Electronic address: rriveradiaz@hotmail.com.
  • Carrascosa Carrillo JM; Servicio de Dermatología, Hospital Universitario Germans Trias i Pujol, Badalona, Barcelona, Spain.
  • Alfonso Zamora S; Acción Psoriasis, Barcelona, Spain.
  • Navarro Valdivieso JP; Técnico Gerencia Adjunta de Ordenación Asistencia e Innovación Organizativa, Servicio Madrileño de Salud (SERMAS)-Inmunología Ruber Internacional, Madrid, Spain.
  • Muñoz Cabello B; Sección de Neuropediatría, Hospital Virgen del Rocío, Sevilla, Spain.
  • Ros Abarca S; Servicio de Dermatología, Hospital de la Santa Creu i Sant Pau, Barcelona, Spain.
  • Soria de Francisco JM; Asociación Española de Ictiosis (ASIC), Ciempozuelos, Madrid, Spain.
  • Daudén Tello E; Servicio de Dermatología, Hospital Universitario de La Princesa, Instituto de Investigación Sanitaria de la Princesa (IIS-IP), Madrid, Spain.
Actas Dermosifiliogr ; 2024 Jul 05.
Article in En, Es | MEDLINE | ID: mdl-38972580
ABSTRACT
This consensus document analyzed the management and emotional journey of patients with GPP (generalized pustular psoriasis), and the desirable course of the disease while detecting critical points and translating them into needs and recommendations. This project was conducted in 3 phases with participation from an advisory committee (n=8), an expert panel (n=15) and patients with GPP (n=6). The patients' disease progression was heterogeneous due to disease variations, different health care models implemented and available resources, and the lack of diagnostic and treatment guidelines. A total of 45 different recommendations have been made to optimize management and address the emotional component of these patients. Five of them stand out for their impact and viability. Therefore, a roadmap of priorities has been made generally available to improve the management of patients with GPP.
Key words

Full text: 1 Collection: 01-internacional Database: MEDLINE Language: En / Es Journal: Actas Dermosifiliogr Year: 2024 Document type: Article

Full text: 1 Collection: 01-internacional Database: MEDLINE Language: En / Es Journal: Actas Dermosifiliogr Year: 2024 Document type: Article