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Social/economic costs and health-related quality of life in patients with Duchenne muscular dystrophy in Europe.
Cavazza, Marianna; Kodra, Yllka; Armeni, Patrizio; De Santis, Marta; López-Bastida, Julio; Linertová, Renata; Oliva-Moreno, Juan; Serrano-Aguilar, Pedro; Posada-de-la-Paz, Manuel; Taruscio, Domenica; Schieppati, Arrigo; Iskrov, Georgi; Péntek, Márta; von der Schulenburg, Johann Matthias Graf; Kanavos, Panos; Chevreul, Karine; Persson, Ulf; Fattore, Giovanni.
Affiliation
  • Cavazza M; Centre for Research on Health and Social Care Management (CERGAS), Bocconi University, Via Roentgen 1, 20136, Milan, Italy. marianna.cavazza@unibocconi.it.
  • Kodra Y; National Centre for Rare Diseases, Istituto Superiore di Sanità (ISS), Rome, Italy.
  • Armeni P; Centre for Research on Health and Social Care Management (CERGAS), Bocconi University, Via Roentgen 1, 20136, Milan, Italy.
  • De Santis M; National Centre for Rare Diseases, Istituto Superiore di Sanità (ISS), Rome, Italy.
  • López-Bastida J; University of Castilla-La Mancha, Talavera de la Reina, Toledo, Spain.
  • Linertová R; Red de Investigación en Servicios Sanitarios en Enfermedades Crónicas (REDISSEC), Madrid, Spain.
  • Oliva-Moreno J; Red de Investigación en Servicios Sanitarios en Enfermedades Crónicas (REDISSEC), Madrid, Spain.
  • Serrano-Aguilar P; Fundación Canaria de Investigación Sanitaria (FUNCANIS), Las Palmas de Gran Canaria, Spain.
  • Posada-de-la-Paz M; Red de Investigación en Servicios Sanitarios en Enfermedades Crónicas (REDISSEC), Madrid, Spain.
  • Taruscio D; University of Castilla-La Mancha, Toledo, Spain.
  • Schieppati A; Red de Investigación en Servicios Sanitarios en Enfermedades Crónicas (REDISSEC), Madrid, Spain.
  • Iskrov G; Evaluation and Planning Service at Canary Islands Health Service, Santa Cruz de Tenerife, Spain.
  • Péntek M; Institute of Rare Diseases Research, ISCIII, SpainRDR and CIBERER, Madrid, Spain.
  • von der Schulenburg JM; National Centre for Rare Diseases, Istituto Superiore di Sanità (ISS), Rome, Italy.
  • Kanavos P; Centro di Ricerche Cliniche per le Malattie Rare "Aldo e Cele Daccò", Mario Negri Institute for Pharmacological Research, Ranica, Bergamo, Italy.
  • Chevreul K; Institute of Rare Diseases, Plovdiv, Bulgaria.
  • Persson U; Department of Social Medicine and Public Health, Faculty of Public Health, Medical University of Plovdiv, Plovdiv, Bulgaria.
  • Fattore G; Department of Health Economics, Corvinus University of Budapest, Budapest, Hungary.
Eur J Health Econ ; 17 Suppl 1: 19-29, 2016 Apr.
Article in En | MEDLINE | ID: mdl-27038625
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Quality of Life / Health Care Costs / Cost of Illness / Muscular Dystrophy, Duchenne Type of study: Health_economic_evaluation / Observational_studies / Prevalence_studies / Qualitative_research / Risk_factors_studies Aspects: Patient_preference Limits: Adolescent / Adult / Child / Child, preschool / Female / Humans / Male Country/Region as subject: Europa Language: En Journal: Eur J Health Econ Journal subject: SAUDE PUBLICA / SERVICOS DE SAUDE Year: 2016 Document type: Article Affiliation country: Italia Country of publication: Alemania
Fulltext
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Quality of Life / Health Care Costs / Cost of Illness / Muscular Dystrophy, Duchenne Type of study: Health_economic_evaluation / Observational_studies / Prevalence_studies / Qualitative_research / Risk_factors_studies Aspects: Patient_preference Limits: Adolescent / Adult / Child / Child, preschool / Female / Humans / Male Country/Region as subject: Europa Language: En Journal: Eur J Health Econ Journal subject: SAUDE PUBLICA / SERVICOS DE SAUDE Year: 2016 Document type: Article Affiliation country: Italia Country of publication: Alemania