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Social/economic costs and health-related quality of life in patients with Prader-Willi syndrome in Europe.
López-Bastida, Julio; Linertová, Renata; Oliva-Moreno, Juan; Posada-de-la-Paz, Manuel; Serrano-Aguilar, Pedro; Kanavos, Panos; Taruscio, Domenica; Schieppati, Arrigo; Iskrov, Georgi; Baji, Petra; Delgado, Claudia; von der Schulenburg, Johann Matthias Graf; Persson, Ulf; Chevreul, Karine; Fattore, Giovanni.
Affiliation
  • López-Bastida J; University of Castilla-La Mancha, Talavera de la Reina, Toledo, Spain. julio.lopezbastida@uclm.es.
  • Linertová R; Red de Investigación en Servicios Sanitarios en Enfermedades Crónicas (REDISSEC), Madrid, Spain. julio.lopezbastida@uclm.es.
  • Oliva-Moreno J; Red de Investigación en Servicios Sanitarios en Enfermedades Crónicas (REDISSEC), Madrid, Spain.
  • Posada-de-la-Paz M; Canary Islands Foundation for Health Research (FUNCANIS), Las Palmas de Gran Canaria, Spain.
  • Serrano-Aguilar P; Red de Investigación en Servicios Sanitarios en Enfermedades Crónicas (REDISSEC), Madrid, Spain.
  • Kanavos P; University of Castilla-La Mancha, Toledo, Spain.
  • Taruscio D; Institute of Rare Diseases Research (IIER), Spain RDR and CIBERER, Madrid, Spain.
  • Schieppati A; Red de Investigación en Servicios Sanitarios en Enfermedades Crónicas (REDISSEC), Madrid, Spain.
  • Iskrov G; Evaluation and Planning Service at Canary Islands Health Service, Santa Cruz de Tenerife, Spain.
  • Baji P; London School of Economics and Political Science-Health Research Centre, London, UK.
  • Delgado C; National Center for Rare Diseases, Istituto superiore di sanità (ISS), Rome, Italy.
  • von der Schulenburg JM; Centro di Ricerche Cliniche per Malattie Rare Aldo e Cele Daccò, Istituto di Ricerche Farmacologiche Mario Negri, Ranica, Bergamo, Italy.
  • Persson U; Institute of Rare Diseases, Plovdiv, Bulgaria.
  • Chevreul K; Department of Social Medicine and Public Health, Faculty of Public Health, Medical University of Plovdiv, Plovdiv, Bulgaria.
  • Fattore G; Department of Health Economics, Corvinus University of Budapest, Budapest, Hungary.
Eur J Health Econ ; 17 Suppl 1: 99-108, 2016 Apr.
Article in En | MEDLINE | ID: mdl-27038627
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Prader-Willi Syndrome / Quality of Life / Health Care Costs / Cost of Illness Type of study: Health_economic_evaluation / Observational_studies / Prevalence_studies / Qualitative_research / Risk_factors_studies Aspects: Patient_preference Limits: Adolescent / Adult / Child / Female / Humans / Male / Middle aged Country/Region as subject: Europa Language: En Journal: Eur J Health Econ Journal subject: SAUDE PUBLICA / SERVICOS DE SAUDE Year: 2016 Document type: Article Affiliation country: España Country of publication: Alemania
Fulltext
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Print
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Prader-Willi Syndrome / Quality of Life / Health Care Costs / Cost of Illness Type of study: Health_economic_evaluation / Observational_studies / Prevalence_studies / Qualitative_research / Risk_factors_studies Aspects: Patient_preference Limits: Adolescent / Adult / Child / Female / Humans / Male / Middle aged Country/Region as subject: Europa Language: En Journal: Eur J Health Econ Journal subject: SAUDE PUBLICA / SERVICOS DE SAUDE Year: 2016 Document type: Article Affiliation country: España Country of publication: Alemania