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Experiences of caregivers of children with inherited metabolic diseases: a qualitative study.
Siddiq, Shabnaz; Wilson, Brenda J; Graham, Ian D; Lamoureux, Monica; Khangura, Sara D; Tingley, Kylie; Tessier, Laure; Chakraborty, Pranesh; Coyle, Doug; Dyack, Sarah; Gillis, Jane; Greenberg, Cheryl; Hayeems, Robin Z; Jain-Ghai, Shailly; Kronick, Jonathan B; Laberge, Anne-Marie; Little, Julian; Mitchell, John J; Prasad, Chitra; Siriwardena, Komudi; Sparkes, Rebecca; Speechley, Kathy N; Stockler, Sylvia; Trakadis, Yannis; Wafa, Sarah; Walia, Jagdeep; Wilson, Kumanan; Yuskiv, Nataliya; Potter, Beth K.
Affiliation
  • Siddiq S; Faculty of Medicine, School of Epidemiology, Public Health and Preventive Medicine, University of Ottawa, 451 Smyth Road, Ottawa, ON, K1H 8M5, Canada.
  • Wilson BJ; Faculty of Medicine, School of Epidemiology, Public Health and Preventive Medicine, University of Ottawa, 451 Smyth Road, Ottawa, ON, K1H 8M5, Canada.
  • Graham ID; Faculty of Medicine, School of Epidemiology, Public Health and Preventive Medicine, University of Ottawa, 451 Smyth Road, Ottawa, ON, K1H 8M5, Canada.
  • Lamoureux M; Ottawa Hospital Research Institute, Ottawa, ON, Canada.
  • Khangura SD; Newborn Screening Ontario, Children's Hospital of Eastern Ontario (CHEO), Ottawa, ON, Canada.
  • Tingley K; Faculty of Medicine, School of Epidemiology, Public Health and Preventive Medicine, University of Ottawa, 451 Smyth Road, Ottawa, ON, K1H 8M5, Canada.
  • Tessier L; Faculty of Medicine, School of Epidemiology, Public Health and Preventive Medicine, University of Ottawa, 451 Smyth Road, Ottawa, ON, K1H 8M5, Canada.
  • Chakraborty P; Newborn Screening Ontario, Children's Hospital of Eastern Ontario (CHEO), Ottawa, ON, Canada.
  • Coyle D; Newborn Screening Ontario, Children's Hospital of Eastern Ontario (CHEO), Ottawa, ON, Canada.
  • Dyack S; Faculty of Medicine, School of Epidemiology, Public Health and Preventive Medicine, University of Ottawa, 451 Smyth Road, Ottawa, ON, K1H 8M5, Canada.
  • Gillis J; Department of Pediatrics, Dalhousie University and IWK Health Centre, Halifax, NS, Canada.
  • Greenberg C; University of British Columbia, BC Children's Hospital, Vancouver, BC, Canada.
  • Hayeems RZ; Department of Pediatrics and Child Health, University of Manitoba and Children's Hospital Research Institute of Manitoba, Winnipeg, MB, Canada.
  • Jain-Ghai S; Institute of Health Policy Management and Evaluation, University of Toronto, Toronto, ON, Canada.
  • Kronick JB; Program in Child Health Evaluative Sciences, The Hospital for Sick Children, Toronto, ON, Canada.
  • Laberge AM; University of Alberta, Stollery Children's Hospital, Edmonton, AB, Canada.
  • Little J; Division of Clinical and Metabolic Genetics, University of Toronto and The Hospital for Sick Children, Toronto, ON, Canada.
  • Mitchell JJ; Medical Genetics, Department of Pediatrics, CHU Sainte-Justine, Montréal, QC, Canada.
  • Prasad C; Faculty of Medicine, School of Epidemiology, Public Health and Preventive Medicine, University of Ottawa, 451 Smyth Road, Ottawa, ON, K1H 8M5, Canada.
  • Siriwardena K; McGill University Health Centre, The Montreal Children's Hospital, Montréal, QC, Canada.
  • Sparkes R; Genetics, Metabolism and Paediatrics, London Health Sciences Centre, Western University, London, ON, Canada.
  • Speechley KN; University of Alberta, Stollery Children's Hospital, Edmonton, AB, Canada.
  • Stockler S; University of Calgary, Alberta Children's Hospital, Calgary, AB, Canada.
  • Trakadis Y; Department of Paediatrics, Western University, London, ON, Canada.
  • Wafa S; University of British Columbia, BC Children's Hospital, Vancouver, BC, Canada.
  • Walia J; McGill University Health Centre, The Montreal Children's Hospital, Montréal, QC, Canada.
  • Wilson K; McGill University Health Centre, The Montreal Children's Hospital, Montréal, QC, Canada.
  • Yuskiv N; Queen's University, Kingston General Hospital, Kingston, ON, Canada.
  • Potter BK; Faculty of Medicine, School of Epidemiology, Public Health and Preventive Medicine, University of Ottawa, 451 Smyth Road, Ottawa, ON, K1H 8M5, Canada.
Orphanet J Rare Dis ; 11(1): 168, 2016 12 07.
Article in En | MEDLINE | ID: mdl-27927250
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Caregivers / Metabolism, Inborn Errors Type of study: Guideline / Observational_studies / Prognostic_studies / Qualitative_research / Risk_factors_studies Limits: Child / Humans Language: En Journal: Orphanet J Rare Dis Journal subject: MEDICINA Year: 2016 Document type: Article Affiliation country: Canadá Country of publication: Reino Unido
Fulltext
Add to My VHL
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Caregivers / Metabolism, Inborn Errors Type of study: Guideline / Observational_studies / Prognostic_studies / Qualitative_research / Risk_factors_studies Limits: Child / Humans Language: En Journal: Orphanet J Rare Dis Journal subject: MEDICINA Year: 2016 Document type: Article Affiliation country: Canadá Country of publication: Reino Unido