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Designing an mHealth application to bridge health disparities in Latina breast cancer survivors: a community-supported design approach.
Iacobelli, Francisco; Adler, Rachel F; Buitrago, Diana; Buscemi, Joanna; Corden, Marya E; Perez-Tamayo, Alejandra; Penedo, Frank J; Rodriguez, Melinda; Yanez, Betina R.
Affiliation
  • Iacobelli F; Department of Computer Science, Northeastern Illinois University, Chicago, IL, USA.
  • Adler RF; Department of Computer Science, Northeastern Illinois University, Chicago, IL, USA.
  • Buitrago D; Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.
  • Buscemi J; Department of Psychology, DePaul University, Chicago, IL, USA.
  • Corden ME; institute for Health Research and Policy, University of Illinois at Chicago, Chicago, IL, USA.
  • Perez-Tamayo A; Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.
  • Penedo FJ; University of Illinois Hospital & Health Science System, Chicago, IL, USA.
  • Rodriguez M; Department of Medical Social Sciences, Northwestern University Feinberg School of Medicine, Chicago, IL, USA.
  • Yanez BR; Department of Computer Science, Northeastern Illinois University, Chicago, IL, USA.
Design Health (Abingdon) ; 2(1): 58-76, 2018.
Article in En | MEDLINE | ID: mdl-30506017
Latina breast cancer patients in the USA report significantly worse cancer-related symptom burden and health-related quality of life than non-Hispanic whites. However, health literacy (e.g. knowledge about cancer, coping skills and communication) has been found to improve quality of life. In this paper, we present a case study of the methodology used to design Mi Guía (My Guide), a mobile application that aims to improve symptom burden and health-related quality of life among Hispanic women who have completed active treatment for breast cancer by increasing their health literacy. We developed a community-supported approach to building the application, which involved: (1) eliciting feedback from community leaders such as support group organizers and facilitators who are bilingual in Spanish and English, prioritize patients' preferences and best interests and have a unique knowledge of the women and their needs;(2) conducting a formal evaluation of design principles based on previous interaction design research and user responses;(3) incorporating feedback from potential future users. In this paper, we discuss our methodology, and the challenges and benefits of this approach. We believe that future studies that aim to develop mobile technologies for underserved populations may benefit from a community-supported approach to design.
Key words

Full text: 1 Collection: 01-internacional Database: MEDLINE Type of study: Guideline Aspects: Patient_preference Language: En Journal: Design Health (Abingdon) Year: 2018 Document type: Article Affiliation country: Estados Unidos Country of publication: Reino Unido

Full text: 1 Collection: 01-internacional Database: MEDLINE Type of study: Guideline Aspects: Patient_preference Language: En Journal: Design Health (Abingdon) Year: 2018 Document type: Article Affiliation country: Estados Unidos Country of publication: Reino Unido