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Fragile X syndrome clinical trials: exploring parental decision-making.
D'Amanda, C S; Peay, H L; Wheeler, A C; Turbitt, E; Biesecker, B B.
Affiliation
  • D'Amanda CS; Social and Behavioral Research Branch, National Human Genome Research Institute, Bethesda, MD, USA.
  • Peay HL; Center for Newborn Screening, Ethics, and Disability Studies, RTI International, Research Triangle Park, NC, USA.
  • Wheeler AC; Center for Newborn Screening, Ethics, and Disability Studies, RTI International, Research Triangle Park, NC, USA.
  • Turbitt E; Social and Behavioral Research Branch, National Human Genome Research Institute, Bethesda, MD, USA.
  • Biesecker BB; Social and Behavioral Research Branch, National Human Genome Research Institute, Bethesda, MD, USA.
J Intellect Disabil Res ; 63(8): 926-935, 2019 08.
Article in En | MEDLINE | ID: mdl-30747463
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Parents / Patient Acceptance of Health Care / Health Knowledge, Attitudes, Practice / Clinical Trials as Topic / Decision Making / Fragile X Syndrome / Motivation Type of study: Prognostic_studies / Qualitative_research Limits: Adult / Child / Female / Humans / Male Language: En Journal: J Intellect Disabil Res Journal subject: TRANSTORNOS MENTAIS Year: 2019 Document type: Article Affiliation country: Estados Unidos Country of publication: Reino Unido
Fulltext
Add to My VHL
Print
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Parents / Patient Acceptance of Health Care / Health Knowledge, Attitudes, Practice / Clinical Trials as Topic / Decision Making / Fragile X Syndrome / Motivation Type of study: Prognostic_studies / Qualitative_research Limits: Adult / Child / Female / Humans / Male Language: En Journal: J Intellect Disabil Res Journal subject: TRANSTORNOS MENTAIS Year: 2019 Document type: Article Affiliation country: Estados Unidos Country of publication: Reino Unido