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Listening to the autistic voice: Mental health priorities to guide research and practice in autism from a stakeholder-driven project.
Benevides, Teal W; Shore, Stephen M; Palmer, Kate; Duncan, Patricia; Plank, Alex; Andresen, May-Lynn; Caplan, Reid; Cook, Barb; Gassner, Dena; Hector, Becca Lory; Morgan, Lisa; Nebeker, Lindsey; Purkis, Yenn; Rankowski, Brigid; Wittig, Karl; Coughlin, Steven S.
Affiliation
  • Benevides TW; Augusta University, USA.
  • Shore SM; Adelphi University, USA.
  • Palmer K; Unaffiliated Author.
  • Duncan P; Unaffiliated Author.
  • Plank A; Unaffiliated Author.
  • Andresen ML; Quality in Health Care Advisory Group, USA.
  • Caplan R; Unaffiliated Author.
  • Cook B; University of Wollongong, Australia.
  • Gassner D; Adelphi University, USA.
  • Hector BL; Unaffiliated Author.
  • Morgan L; Unaffiliated Author.
  • Nebeker L; Unaffiliated Author.
  • Purkis Y; Unaffiliated Author.
  • Rankowski B; The Way We Move, USA.
  • Wittig K; Unaffiliated Author.
  • Coughlin SS; Augusta University, USA.
Autism ; 24(4): 822-833, 2020 05.
Article in En | MEDLINE | ID: mdl-32429818
ABSTRACT
LAY ABSTRACT Autistic adults commonly experience mental health conditions. However, research rarely involves autistic adults in deciding priorities for research on mental healthcare approaches that might work for them. The purpose of this article is to describe a stakeholder-driven project that involved autistic adults in co-leading and designing research about priorities to address mental health needs. Through a large online survey, two large meetings, and three face-to-face focus group discussions involving over 350 stakeholders, we identified five priorities for mental health research desired by autistic adults. These priorities and preferred outcomes should be used to guide research and practice for autistic adults.
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Autistic Disorder / Autism Spectrum Disorder Limits: Adult / Female / Humans / Male Language: En Journal: Autism Journal subject: PSICOLOGIA / PSIQUIATRIA Year: 2020 Document type: Article Affiliation country: Estados Unidos Publication country: ENGLAND / ESCOCIA / GB / GREAT BRITAIN / INGLATERRA / REINO UNIDO / SCOTLAND / UK / UNITED KINGDOM

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Autistic Disorder / Autism Spectrum Disorder Limits: Adult / Female / Humans / Male Language: En Journal: Autism Journal subject: PSICOLOGIA / PSIQUIATRIA Year: 2020 Document type: Article Affiliation country: Estados Unidos Publication country: ENGLAND / ESCOCIA / GB / GREAT BRITAIN / INGLATERRA / REINO UNIDO / SCOTLAND / UK / UNITED KINGDOM