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Development of an international standard set of clinical and patient-reported outcomes for children and adults with congenital heart disease: a report from the International Consortium for Health Outcomes Measurement Congenital Heart Disease Working Group.
Hummel, Kevin; Whittaker, Sarah; Sillett, Nick; Basken, Amy; Berghammer, Malin; Chalela, Tomás; Chauhan, Julie; Garcia, Luis Antonio; Hasan, Babar; Jenkins, Kathy; Ladak, Laila Akbar; Madsen, Nicolas; March, Almudena; Pearson, Disty; Schwartz, Steven M; St Louis, James D; van Beynum, Ingrid; Verstappen, Amy; Williams, Roberta; Zheleva, Bistra; Hom, Lisa; Martin, Gerard R.
Affiliation
  • Hummel K; Department of Pediatrics, University of Utah, Salt Lake City, UT, USA.
  • Whittaker S; Department of Pediatric Cardiology, Boston Children's Hospital, 300 Longwood Ave, Boston, MA, USA.
  • Sillett N; International Consortium for Health Outcomes Measurement, Cambridge, MA, USA.
  • Basken A; International Consortium for Health Outcomes Measurement, Cambridge, MA, USA.
  • Berghammer M; Pediatric Congenital Heart Association, Madison, WI, USA.
  • Chalela T; Conquering CHD, Madison, WI, USA.
  • Chauhan J; Queen Silvia Children Hospital/Sahlgrenska University Hospital, Gothenburg, Sweden.
  • Garcia LA; University West, Trollhättan, Sweden.
  • Hasan B; Fundacion Cardiofantil, Bogota, Colombia.
  • Jenkins K; All India Institute of Medical Sciences, New Delhi, India.
  • Ladak LA; Kardias A.C. Foundation, Mexico City, Mexico.
  • Madsen N; Department of Pediatrics, Aga Khan University, Karachi City, Pakistan.
  • March A; Department of Pediatric Cardiology, Boston Children's Hospital, 300 Longwood Ave, Boston, MA, USA.
  • Pearson D; Department of Pediatrics, Aga Khan University, Karachi City, Pakistan.
  • Schwartz SM; Susan Wakil School of Nursing, The University of Sydney, Sydney, Australia.
  • St Louis JD; Department of Cardiology, Cincinnati Children's Hospital, Cincinnati, OH, USA.
  • van Beynum I; Kardias A.C. Foundation, Mexico City, Mexico.
  • Verstappen A; Department of Pediatric Cardiology, Boston Children's Hospital, 300 Longwood Ave, Boston, MA, USA.
  • Williams R; Department of Cardiology, The Hospital for Sick Children, Toronto, ON, Canada.
  • Zheleva B; Department of Surgery, Medical College of Georgia, Augusta, GA, USA.
  • Hom L; Department of Pediatric Cardiology, Erasmus Medical Centre, Rotterdam, Netherlands.
  • Martin GR; Sophia Children's Hospital, Rotterdam, Netherlands.
Eur Heart J Qual Care Clin Outcomes ; 7(4): 354-365, 2021 07 21.
Article in En | MEDLINE | ID: mdl-33576374
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Outcome Assessment, Health Care / Heart Defects, Congenital Type of study: Prognostic_studies / Qualitative_research Aspects: Patient_preference Limits: Adult / Child / Humans Language: En Journal: Eur Heart J Qual Care Clin Outcomes Year: 2021 Document type: Article Affiliation country: Estados Unidos Country of publication: Reino Unido
Fulltext
Add to My VHL
Print
XML
PubMed Links
Search on Google

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Outcome Assessment, Health Care / Heart Defects, Congenital Type of study: Prognostic_studies / Qualitative_research Aspects: Patient_preference Limits: Adult / Child / Humans Language: En Journal: Eur Heart J Qual Care Clin Outcomes Year: 2021 Document type: Article Affiliation country: Estados Unidos Country of publication: Reino Unido