Understanding Caregiver Strain in Parkinsonism-A Mixed Methods Approach.
J Geriatr Psychiatry Neurol
; 35(3): 363-373, 2022 05.
Article
in En
| MEDLINE
| ID: mdl-33648358
ABSTRACT
BACKGROUND:
Parkinsonism, including Parkinson's disease (PD) are progressive neurological conditions. As these condition progress, individuals will need more support with their care needs to maintain independent community-living. Care needs are mainly met by unpaid, informal caregivers, usually close family members or friends. Caregiver strain is thought to lead to the need for care home placement when the caregiver can no longer cope.OBJECTIVE:
To understand predictors of caregiver strain and its influence on care home placement for people with moderate to advanced Parkinsonism.METHODS:
This is a convergent mixed methods study. Quantitative data, following an adapted stress-appraisal model, were collected on caregiver profile, tasks performed and causes of caregiver strain. Semi-structured, in-depth interviews were conducted with caregivers of people with PD (PwP) who went into a care home during the study period, to develop a deeper understanding of the caregiver role and the factors influencing caregiver strain.RESULTS:
Quantitative data were collected from 115 patient caregiver dyads. Interviews were conducted with 10 caregivers. A model to predict caregiver strain was developed and predictors of caregiver strain were identified, such as functional disability and poor caregiver sleep.CONCLUSION:
Our findings further demonstrate the complexity of carer strain. Particular dimensions are identified that need to be addressed within clinical practice to reduce carer strain and support people with Parkinsonism to remain within their own home for as long as possible.Key words
Full text:
1
Collection:
01-internacional
Database:
MEDLINE
Main subject:
Parkinson Disease
/
Caregivers
Type of study:
Prognostic_studies
/
Qualitative_research
Limits:
Humans
Language:
En
Journal:
J Geriatr Psychiatry Neurol
Journal subject:
GERIATRIA
/
NEUROLOGIA
/
PSIQUIATRIA
Year:
2022
Document type:
Article
Affiliation country:
Reino Unido