Patient perspectives in pediatric neurology: a critical shift in the paradigm of outcome measurement.
Dev Med Child Neurol
; 64(2): 149-155, 2022 02.
Article
in En
| MEDLINE
| ID: mdl-34091886
ABSTRACT
This review explores children's self-reported outcome measurements in pediatric neurology. We examine the following questions (1) What is meant by patient-reported health, functioning, and quality of life outcomes? (2) How can patients express whether the interventions they receive do more good than harm? (3) Why and how should pediatric neurology patients help determine the outcomes of interest? (4) What tools and recommendations are available to evaluate the outcomes of interest? Applying patients' perspectives across the processes of evaluation of medical interventions has become an important expectation. These developments, consistent with current healthcare goals, coincide with the evolution of pediatric neurology into a sophisticated diagnostic-interventional field that aims to prolong survival, decrease impairments and symptoms, and improve patients' well-being - the recognized essential endpoints of interest in all medicine.
Full text:
1
Collection:
01-internacional
Database:
MEDLINE
Main subject:
Pediatrics
/
Patient Reported Outcome Measures
/
Neurology
Type of study:
Guideline
Aspects:
Patient_preference
Limits:
Child
/
Humans
Language:
En
Journal:
Dev Med Child Neurol
Year:
2022
Document type:
Article
Affiliation country:
Canadá