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Rationale, design and methodology of APPROACH-IS II: International study of patient-reported outcomes and frailty phenotyping in adults with congenital heart disease.
Van Bulck, Liesbet; Kovacs, Adrienne H; Goossens, Eva; Luyckx, Koen; Zaidi, Ali; Wang, Jou-Kou; Yadeta, Dejuma; Windram, Jonathan; Van De Bruaene, Alexander; Thomet, Corina; Thambo, Jean-Benoît; Taunton, Marshall; Sasikumar, Navaneetha; Sandberg, Camilla; Saidi, Arwa; Rutz, Tobias; Ortiz, Lucia; Mwita, Julius Chacha; Moon, Ju Ryoung; Menahem, Samuel; Mattsson, Eva; Mandalenakis, Zacharias; Mahadevan, Vaikom S; Lykkeberg, Birgitte; Leye, Mohamed; Leong, Ming Chern; Ladouceur, Magalie; Ladak, Laila Akbar; Kim, Yuli; Khairy, Paul; Kaneva, Anna; Johansson, Bengt; Jackson, Jamie L; Giannakoulas, George; Gabriel, Harald; Fernandes, Susan M; Enomoto, Junko; Demir, Fatma; de Hosson, Michèle; Constantine, Andrew; Coats, Louise; Christersson, Christina; Cedars, Ari; Caruana, Maryanne; Callus, Edward; Brainard, Sarah; Bouchardy, Judith; Boer, Anna; Baraona Reyes, Fernando; Areias, Maria Emília.
Affiliation
  • Van Bulck L; KU Leuven - University of Leuven, Leuven, Belgium; Research Foundation Flanders (FWO), Brussels, Belgium.
  • Kovacs AH; Oregon Health & Science University, Portland, OR, USA.
  • Goossens E; KU Leuven - University of Leuven, Leuven, Belgium; University of Antwerp, Antwerp, Belgium.
  • Luyckx K; KU Leuven - University of Leuven, Leuven, Belgium; UNIBS, University of the Free State, Bloemfontein, South Africa.
  • Zaidi A; Mount Sinai Heart, New York, NY, USA.
  • Wang JK; National Taiwan University Hospital, Taipei City, Taiwan.
  • Yadeta D; Addis Ababa University, Addis Ababa, Ethiopia.
  • Windram J; Mazankowski Alberta Heart Institute, Edmonton, Canada.
  • Van De Bruaene A; University Hospitals Leuven, Leuven, Belgium.
  • Thomet C; Inselspital, Bern University Hospital, University of Bern, Switzerland.
  • Thambo JB; Hôpital cardiologique Haut-Leveque, Bordeaux, France.
  • Taunton M; Oregon Health & Science University, Portland, OR, USA.
  • Sasikumar N; Amrita Institute of Medical Sciences, Kochi, Kerala, India.
  • Sandberg C; Umeå University, Umeå, Sweden.
  • Saidi A; University of Florida Health, Gainesville, FL, USA.
  • Rutz T; Lausanne University Hospital and University of Lausanne, Lausanne, Switzerland.
  • Ortiz L; Hospital San Juan De Dios De La Plata, Buenos Aires, Argentina.
  • Mwita JC; University of Botswana and Princess Marina Hospital, Gaborone, Botswana.
  • Moon JR; Samsung Medical Center, Seoul, South Korea.
  • Menahem S; Monash University, Melbourne, Australia.
  • Mattsson E; Karolinska Institutet, Stockholm, Sweden.
  • Mandalenakis Z; Sahlgrenska University Hospital/Östra, Gothenburg, Sweden.
  • Mahadevan VS; University of California San Francisco (UCSF), San Francisco, CA, USA.
  • Lykkeberg B; Copenhagen University Hospital Rigshospitalet, Copenhagen, Denmark.
  • Leye M; University of Thiés, Thiés, Senegal.
  • Leong MC; IJN (National Heart Institute), Kuala Lumpur, Malaysia.
  • Ladouceur M; Hôpital Européen Georges Pompidou, AP-HP Paris, France.
  • Ladak LA; Aga Khan University, Karachi, Pakistan.
  • Kim Y; Penn Medicine and Children's Hospital of Philadelphia, Philadelphia, PA, USA.
  • Khairy P; Montreal Heart Institute, Université de Montréal, Montreal, Canada.
  • Kaneva A; National Heart Hospital, Sofia, Bulgaria.
  • Johansson B; Umeå University, Umeå, Sweden.
  • Jackson JL; Nationwide Children's Hospital, Columbus, OH, USA.
  • Giannakoulas G; AHEPA University Hospital, Aristotle University of Thessaloniki, Greece.
  • Gabriel H; Medical University of Vienna, Vienna, Austria.
  • Fernandes SM; Lucile Packard Children's Hospital and Stanford Health Care, Stanford, CA, USA.
  • Enomoto J; Chiba Cerebral and Cardiovascular Center, Chiba, Japan; Toyo University, Tokyo, Japan.
  • Demir F; Ege University Health Application and Research Center, Bornova/IZMIR, Turkey.
  • de Hosson M; Ghent University Hospital, Ghent, Belgium.
  • Constantine A; Royal Brompton Hospital, Royal Brompton & Harefield Hospitals, Guy's and St Thomas' NHS Foundation Trust, London, UK.
  • Coats L; Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK.
  • Christersson C; Uppsala University, Uppsala, Sweden.
  • Cedars A; University of Southwestern Medical Center, TX, Dallas, USA; Johns Hopkins Hospital, Baltimore, MD, USA.
  • Caruana M; Mater Dei Hospital, L-Imsida, Malta.
  • Callus E; IRCCS Policlinico San Donato, San Donato Milanese, Milan, Italy; University of Milan, Milan, Italy.
  • Brainard S; Boston Children's Hospital, Brigham and Women's Hospital, Harvard Medical School, Boston, MA, USA.
  • Bouchardy J; Lausanne University Hospital and University of Lausanne, Lausanne, Switzerland; Hôpitaux Universitaires de Genève, Genève, Switzerland.
  • Boer A; University Medical Center Groningen, Groningen, the Netherlands.
  • Baraona Reyes F; Pontificia Universidad Católica de Chile and Instituto Nacional Del Torax, Santiago, Chile.
  • Areias ME; UnIC@RISE, University of Porto, Porto, Portugal; Centro Hospitalar Universitário de S. João, Porto, Portugal.
Int J Cardiol ; 363: 30-39, 2022 09 15.
Article in En | MEDLINE | ID: mdl-35780933
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Frailty / Heart Defects, Congenital Type of study: Clinical_trials / Diagnostic_studies / Observational_studies / Prevalence_studies / Risk_factors_studies Aspects: Patient_preference Limits: Humans Language: En Journal: Int J Cardiol Year: 2022 Document type: Article Affiliation country: Bélgica Country of publication: Países Bajos
Fulltext
Add to My VHL
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Frailty / Heart Defects, Congenital Type of study: Clinical_trials / Diagnostic_studies / Observational_studies / Prevalence_studies / Risk_factors_studies Aspects: Patient_preference Limits: Humans Language: En Journal: Int J Cardiol Year: 2022 Document type: Article Affiliation country: Bélgica Country of publication: Países Bajos