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Survival, hospitalisation and surgery in children born with Pierre Robin sequence: a European population-based cohort study.
Santoro, Michele; Garne, Ester; Coi, Alessio; Tan, Joachim; Loane, Maria; Ballardini, Elisa; Cavero-Carbonell, Clara; de Walle, Hermien Ek; Gatt, Miriam; Gissler, Mika; Jordan, Sue; Klungsøyr, Kari; Lelong, Natalie; Urhoj, Stine Kjaer; Wellesley, Diana G; Morris, Joan K.
Affiliation
  • Santoro M; Unit of Epidemiology of rare Diseases and Congenital Anomalies, Institute of Clinical Physiology, National Research Council, Pisa, Italy msantoro@ifc.cnr.it.
  • Garne E; Department of Paediatrics and Adolescent Medicine, Lillebaelt Hospital, University Hospital of Southern Denmark, Kolding, Denmark.
  • Coi A; Unit of Epidemiology of rare Diseases and Congenital Anomalies, Institute of Clinical Physiology, National Research Council, Pisa, Italy.
  • Tan J; Population Health Research Institute, St George's, University of London, London, UK.
  • Loane M; Faculty of Life and Health Sciences, Ulster University, Newtowanbbey, UK.
  • Ballardini E; Neonatal Intensive Care Unit, Paediatric Section, IMER Registry (Emilia Romagna Registry of Birth Defects), Department of Medical Sciences, University of Ferrara, Ferrara, Italy.
  • Cavero-Carbonell C; Rare Diseases Research Unit, Foundation for the Promotion of Health and Biomedical Research in the Valencian Region FISABIO, Valencia, Spain.
  • de Walle HE; Genetics, University Medical Center Groningen, University of Groningen, Groningen, The Netherlands.
  • Gatt M; Directorate for Health Information and Research, Malta Congenital Anomalies Registry, G'mangia, Malta.
  • Gissler M; Department of Knowledge Brokers, THL Finnish Institute for Health and Welfare, Helsinki, Finland.
  • Jordan S; Region Stockholm, Academic Primary Health Care Centre, Stockholm, Sweden.
  • Klungsøyr K; Faculty of Medicine, Health and Life Science, Swansea University, Swansea, UK.
  • Lelong N; Department of Global Public Health and Primary Care, University of Bergen, Bergen, Norway.
  • Urhoj SK; Division of Mental and Physical Health, Norwegian Institute of Public Health, Bergen, Norway.
  • Wellesley DG; Université de Paris, CRESS-Epopé, INSERM, INRA, Paris, France.
  • Morris JK; Department of Paediatrics and Adolescent Medicine, Lillebaelt Hospital, University Hospital of Southern Denmark, Kolding, Denmark.
Arch Dis Child ; 108(7): 550-555, 2023 07.
Article in En | MEDLINE | ID: mdl-37160334
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Pierre Robin Syndrome Type of study: Etiology_studies / Incidence_studies / Observational_studies / Prognostic_studies / Risk_factors_studies / Systematic_reviews Limits: Child / Child, preschool / Humans / Infant Country/Region as subject: Europa Language: En Journal: Arch Dis Child Year: 2023 Document type: Article Affiliation country: Italia
Fulltext
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Pierre Robin Syndrome Type of study: Etiology_studies / Incidence_studies / Observational_studies / Prognostic_studies / Risk_factors_studies / Systematic_reviews Limits: Child / Child, preschool / Humans / Infant Country/Region as subject: Europa Language: En Journal: Arch Dis Child Year: 2023 Document type: Article Affiliation country: Italia