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Barriers to a successful healthcare transition for individuals with urea cycle disorders.
Ladha, Farah A; Le Mons, Cynthia; Craigen, William J; Magoulas, Pilar L; Marom, Ronit; Lewis, Andrea M.
Affiliation
  • Ladha FA; School of Health Professions, Baylor College of Medicine, Houston, TX, USA; Texas Children's Hospital, Houston, TX, USA. Electronic address: Ladha@bcm.edu.
  • Le Mons C; National Urea Cycle Disorders Foundation, Pasadena, CA, USA. Electronic address: Cindy@nucdf.org.
  • Craigen WJ; Department of Molecular and Human Genetics, Baylor College of Medicine, Houston, TX, USA; Texas Children's Hospital, Houston, TX, USA. Electronic address: Wcraigen@bcm.edu.
  • Magoulas PL; School of Health Professions, Baylor College of Medicine, Houston, TX, USA; Department of Molecular and Human Genetics, Baylor College of Medicine, Houston, TX, USA; Texas Children's Hospital, Houston, TX, USA. Electronic address: Plmagoul@texaschildrens.org.
  • Marom R; Department of Molecular and Human Genetics, Baylor College of Medicine, Houston, TX, USA; Texas Children's Hospital, Houston, TX, USA. Electronic address: Marom@bcm.edu.
  • Lewis AM; Department of Molecular and Human Genetics, Baylor College of Medicine, Houston, TX, USA; Texas Children's Hospital, Houston, TX, USA. Electronic address: Andrea.X.Lewis@questdiagnostics.com.
Mol Genet Metab ; 139(3): 107609, 2023 07.
Article in En | MEDLINE | ID: mdl-37245377
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Transition to Adult Care Type of study: Prognostic_studies / Qualitative_research Aspects: Implementation_research Limits: Adult / Child / Humans Language: En Journal: Mol Genet Metab Journal subject: BIOLOGIA MOLECULAR / BIOQUIMICA / METABOLISMO Year: 2023 Document type: Article Country of publication: Estados Unidos
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Transition to Adult Care Type of study: Prognostic_studies / Qualitative_research Aspects: Implementation_research Limits: Adult / Child / Humans Language: En Journal: Mol Genet Metab Journal subject: BIOLOGIA MOLECULAR / BIOQUIMICA / METABOLISMO Year: 2023 Document type: Article Country of publication: Estados Unidos