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Assessment of Real-World Patient-Reported Outcomes in Patients Initiating Biologic Agents for the Treatment of Autoimmune Diseases: An Observational Study in Four Patient-Powered Research Networks.
Beukelman, Timothy; Long, Millie D; Rhee, Rennie L; Kappelman, Michael D; Merkel, Peter A; Nowell, William Benjamin; Clinton, Cassie; Ringold, Sarah; Del Gaizo, Vincent; Price, Brian; Shaw, Dianne G; Venkatachalam, Shilpa; Cuthbertson, David; Xie, Fenglong; Zhang, Xian; Curtis, Jeffrey R.
Affiliation
  • Beukelman T; Department of Pediatrics, Division of Rheumatology, University of Alabama at Birmingham, Birmingham, AL, USA.
  • Long MD; Department of Medicine, Division of Gastroenterology and Hepatology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
  • Rhee RL; Department of Medicine, Division of Rheumatology, University of Pennsylvania, Philadelphia, PA, USA.
  • Kappelman MD; Department of Pediatrics, Division of Pediatric Gastroenterology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
  • Merkel PA; Department of Medicine, Division of Rheumatology, University of Pennsylvania, Philadelphia, PA, USA.
  • Nowell WB; Department of Biostatistics, Epidemiology, and Informatics; Division of Epidemiology, University of Pennsylvania, Philadelphia, PA, USA.
  • Clinton C; Global Healthy Living Foundation, Upper Nyack, NY, USA.
  • Ringold S; Department of Medicine, Division of Clinical Immunology and Rheumatology, University of Alabama at Birmingham, Birmingham, AL, USA.
  • Del Gaizo V; Department of Pediatrics, Division of Rheumatology, Seattle Children's Hospital, Seattle, WA, USA.
  • Price B; Childhood Arthritis and Rheumatology Research Alliance (CARRA) and PARTNERS PPRN, Milwaukee, WI, USA.
  • Shaw DG; Crohn's and Colitis Foundation and IBD-Partners, New York, NY, USA.
  • Venkatachalam S; Vasculitis Patient Powered Research Network, Kansas City, MO, USA.
  • Cuthbertson D; Global Healthy Living Foundation, Upper Nyack, NY, USA.
  • Xie F; Health Informatics Institute, University of South Florida, Tampa, FL, USA.
  • Zhang X; Department of Medicine, Division of Clinical Immunology and Rheumatology, University of Alabama at Birmingham, Birmingham, AL, USA.
  • Curtis JR; Department of Pediatrics, Division of Pediatric Gastroenterology, University of North Carolina at Chapel Hill, Chapel Hill, NC, USA.
Patient Relat Outcome Meas ; 14: 171-180, 2023.
Article in En | MEDLINE | ID: mdl-37333063
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Full text: 1 Collection: 01-internacional Database: MEDLINE Type of study: Observational_studies Aspects: Patient_preference Language: En Journal: Patient Relat Outcome Meas Year: 2023 Document type: Article Affiliation country: Estados Unidos Country of publication: Nueva Zelanda
Fulltext
Add to My VHL
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Full text: 1 Collection: 01-internacional Database: MEDLINE Type of study: Observational_studies Aspects: Patient_preference Language: En Journal: Patient Relat Outcome Meas Year: 2023 Document type: Article Affiliation country: Estados Unidos Country of publication: Nueva Zelanda