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Non-randomised feasibility study testing a primary care intervention to promote engagement in an online health community for adults with troublesome asthma: protocol.
Karampatakis, Georgios Dimitrios; Wood, Helen E; Griffiths, Chris J; Taylor, Stephanie J C; Toffolutti, Veronica; Bird, Victoria J; Lea, Nathan C; Ashcroft, Richard E; Day, Bill; Coulson, Neil S; Panzarasa, Pietro; Li, Xiancheng; Sheikh, Aziz; Relton, Clare; Sastry, Nishanth; Watson, Jane S; Marsh, Viv; Mant, Jonathan; Mihaylova, Borislava; Walker, Neil; De Simoni, Anna.
Affiliation
  • Karampatakis GD; Wolfson Institute of Population Health, Barts and The London School of Medicine and Dentistry, Asthma UK Centre for Applied Research, Queen Mary University of London, London, UK g.karampatakis@qmul.ac.uk.
  • Wood HE; Wolfson Institute of Population Health, Barts and The London School of Medicine and Dentistry, Asthma UK Centre for Applied Research, Queen Mary University of London, London, UK.
  • Griffiths CJ; Wolfson Institute of Population Health, Barts and The London School of Medicine and Dentistry, Asthma UK Centre for Applied Research, Queen Mary University of London, London, UK.
  • Taylor SJC; Wolfson Institute of Population Health, Barts and The London School of Medicine and Dentistry, Asthma UK Centre for Applied Research, Queen Mary University of London, London, UK.
  • Toffolutti V; Wolfson Institute of Population Health, Barts and The London School of Medicine and Dentistry, Asthma UK Centre for Applied Research, Queen Mary University of London, London, UK.
  • Bird VJ; Wolfson Institute of Population Health, Barts and The London School of Medicine and Dentistry, Asthma UK Centre for Applied Research, Queen Mary University of London, London, UK.
  • Lea NC; Department of Medical Informatics and Statistics, The European Institute for Innovation through Health Data, Ghent University Hospital, Gent, Belgium.
  • Ashcroft RE; The City Law School, City University of London, London, UK.
  • Day B; Wolfson Institute of Population Health, Barts and The London School of Medicine and Dentistry, Asthma UK Centre for Applied Research, Queen Mary University of London, London, UK.
  • Coulson NS; Nottingham City Hospital, University of Nottingham School of Medicine, Nottingham, UK.
  • Panzarasa P; School of Business and Management, Queen Mary University of London, London, UK.
  • Li X; School of Business and Management, Queen Mary University of London, London, UK.
  • Sheikh A; Usher Institute, College of Medicine and Veterinary Medicine, The University of Edinburgh, Edinburgh, UK.
  • Relton C; Wolfson Institute of Population Health, Barts and The London School of Medicine and Dentistry, Asthma UK Centre for Applied Research, Queen Mary University of London, London, UK.
  • Sastry N; Department of Computer Science, University of Surrey, Guildford, UK.
  • Watson JS; Respiratory Department, St George's Healthcare NHS Trust, London, UK.
  • Marsh V; Usher Institute, College of Medicine and Veterinary Medicine, The University of Edinburgh, Edinburgh, UK.
  • Mant J; Department of Public Health and Primary Care, University of Cambridge, Cambridge, UK.
  • Mihaylova B; Wolfson Institute of Population Health, Barts and The London School of Medicine and Dentistry, Asthma UK Centre for Applied Research, Queen Mary University of London, London, UK.
  • Walker N; Wolfson Institute of Population Health, Barts and The London School of Medicine and Dentistry, Asthma UK Centre for Applied Research, Queen Mary University of London, London, UK.
  • De Simoni A; Wolfson Institute of Population Health, Barts and The London School of Medicine and Dentistry, Asthma UK Centre for Applied Research, Queen Mary University of London, London, UK.
BMJ Open ; 13(7): e073503, 2023 07 11.
Article in En | MEDLINE | ID: mdl-37433727
INTRODUCTION: In the UK, approximately 4.3 million adults have asthma, with one-third experiencing poor asthma control, affecting their quality of life, and increasing their healthcare use. Interventions promoting emotional/behavioural self-management can improve asthma control and reduce comorbidities and mortality. Integration of online peer support into primary care services to foster self-management is a novel strategy. We aim to co-design and evaluate an intervention for primary care clinicians to promote engagement with an asthma online health community (OHC). Our protocol describes a 'survey leading to a trial' design as part of a mixed-methods, non-randomised feasibility study to test the feasibility and acceptability of the intervention. METHODS AND ANALYSIS: Adults on the asthma registers of six London general practices (~3000 patients) will be invited to an online survey, via text messages. The survey will collect data on attitudes towards seeking online peer support, asthma control, anxiety, depression, quality of life, information on the network of people providing support with asthma and demographics. Regression analyses of the survey data will identify correlates/predictors of attitudes/receptiveness towards online peer support. Patients with troublesome asthma, who (in the survey) expressed interest in online peer support, will be invited to receive the intervention, aiming to reach a recruitment target of 50 patients. Intervention will involve a one-off, face-to-face consultation with a practice clinician to introduce online peer support, sign patients up to an established asthma OHC, and encourage OHC engagement. Outcome measures will be collected at baseline and 3 months post intervention and analysed with primary care and OHC engagement data. Recruitment, intervention uptake, retention, collection of outcomes, and OHC engagement will be assessed. Interviews with clinicians and patients will explore experiences of the intervention. ETHICS AND DISSEMINATION: Ethical approval was obtained from a National Health Service Research Ethics Committee (reference: 22/NE/0182). Written consent will be obtained before intervention receipt and interview participation. Findings will be shared via dissemination to general practices, conference presentations and peer-reviewed publications. TRIAL REGISTRATION NUMBER: NCT05829265.
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Quality of Life / Asthma Type of study: Clinical_trials / Guideline / Prognostic_studies / Qualitative_research Aspects: Ethics / Patient_preference Limits: Adult / Humans Language: En Journal: BMJ Open Year: 2023 Document type: Article Country of publication: Reino Unido

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Quality of Life / Asthma Type of study: Clinical_trials / Guideline / Prognostic_studies / Qualitative_research Aspects: Ethics / Patient_preference Limits: Adult / Humans Language: En Journal: BMJ Open Year: 2023 Document type: Article Country of publication: Reino Unido