Your browser doesn't support javascript.
loading
The development, content and response process validation of a caregiver-reported severity measure for CDKL5 deficiency disorder.
Ziniel, Sonja I; Mackie, Alexandra; Saldaris, Jacinta; Leonard, Helen; Jacoby, Peter; Marsh, Eric D; Suter, Bernhard; Pestana-Knight, Elia; Olson, Heather E; Price, Dana; Weisenberg, Judith; Rajaraman, Rajsekar; VanderVeen, Gina; Benke, Tim A; Downs, Jenny; Demarest, Scott.
Affiliation
  • Ziniel SI; University of Colorado School of Medicine Department of Pediatrics, Section of Pediatric Hospital Medicine, 13123 East 16th Avenue, Box 302, Aurora, CO, United States; Children's Hospital Colorado Precision Medicine Institute, 13123 East 16th Avenue, Box 155, Aurora, CO 80045 United States.
  • Mackie A; University of Colorado School of Medicine Department of Pediatrics, Section of Neurology, 13123 East 16th Avenue, Box 155, Aurora, CO 80045, United States.
  • Saldaris J; University of Western Australia Centre for Child Health Research, Telethon Kids Institute, PO Box 855, West Perth, Western Australia 6872, Australia.
  • Leonard H; University of Western Australia Centre for Child Health Research, Telethon Kids Institute, PO Box 855, West Perth, Western Australia 6872, Australia.
  • Jacoby P; University of Western Australia Centre for Child Health Research, Telethon Kids Institute, PO Box 855, West Perth, Western Australia 6872, Australia.
  • Marsh ED; Children's Hospital of Philadelphia, 3401 Civic Center Blvd, Philadelphia, PA 19104, United States.
  • Suter B; Baylor College of Medicine and Texas Children's Hospital, 6701 Fannin St MWT, Suite 1250, Houston, TX 77030, United States.
  • Pestana-Knight E; Cleveland Clinic Neurological Institute, Epilepsy Center, S10-024 9500 Euclid Ave, Cleveland, OH 44195, United States.
  • Olson HE; Boston Children's Hospital Department of Neurology Division of Epilepsy and Clinical Neurophysiology and Epilepsy Genetics Program, 300 Longwood Ave, Boston, MA, United States.
  • Price D; NYU Langone Comprehensive Epilepsy Center, 223 East 34th Street, New York, NY 10016, United States.
  • Weisenberg J; Washington University School of Medicine Department of Neurology, Division of Pediatric Neurology, 660 South Euclid Ave Campus Box 8111, St. Louis, MO 63110 United States.
  • Rajaraman R; David Geffen School of Medicine and UCLA Mattel Children's Hospital Division of Pediatric Neurology, 10833 Le Conte Ave 22-474 MDCC, Los Angeles, CA 90095 United States.
  • VanderVeen G; Children's Hospital Colorado Precision Medicine Institute, 13123 East 16th Avenue, Box 155, Aurora, CO 80045 United States; University of Colorado School of Medicine Department of Pediatrics, Section of Neurology, 13123 East 16th Avenue, Box 155, Aurora, CO 80045, United States.
  • Benke TA; Children's Hospital Colorado Precision Medicine Institute, 13123 East 16th Avenue, Box 155, Aurora, CO 80045 United States; University of Colorado School of Medicine Department of Pediatrics, Section of Neurology, 13123 East 16th Avenue, Box 155, Aurora, CO 80045, United States.
  • Downs J; University of Western Australia Centre for Child Health Research, Telethon Kids Institute, PO Box 855, West Perth, Western Australia 6872, Australia; Curtin University, Curtin School of Allied Health, GPO Box U1987, Perth, Western Australia 6845, Australia.
  • Demarest S; Children's Hospital Colorado Precision Medicine Institute, 13123 East 16th Avenue, Box 155, Aurora, CO 80045 United States; University of Colorado School of Medicine Department of Pediatrics, Section of Neurology, 13123 East 16th Avenue, Box 155, Aurora, CO 80045, United States. Electronic address:
Epilepsy Res ; 197: 107231, 2023 11.
Article in En | MEDLINE | ID: mdl-37751639
Subject(s)
Key words
Fulltext
Add to My VHL
Print
XML
PubMed Links
Search on Google

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Spasms, Infantile / Epileptic Syndromes Limits: Adolescent / Adult / Child / Child, preschool / Humans / Infant Language: En Journal: Epilepsy Res Journal subject: CEREBRO / NEUROLOGIA Year: 2023 Document type: Article Country of publication: Países Bajos
Fulltext
Add to My VHL
Print
XML
PubMed Links
Search on Google

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Spasms, Infantile / Epileptic Syndromes Limits: Adolescent / Adult / Child / Child, preschool / Humans / Infant Language: En Journal: Epilepsy Res Journal subject: CEREBRO / NEUROLOGIA Year: 2023 Document type: Article Country of publication: Países Bajos