Your browser doesn't support javascript.
loading
SIGnature Libraries: A roadmap for the formation of special interest group libraries.
Kim, Young-Min; Chin, Eric M; Fahey, Michael; Gelineau-Morel, Rose; Himmelmann, Kate; O'Malley, Jennifer; Oskoui, Maryam; Shapiro, Bruce; Shevell, Michael; Wilson, Jenny L; Wiznitzer, Max; Aravamuthan, Bhooma.
Affiliation
  • Kim YM; Department of Neurology and Pediatrics, Loma Linda University, Loma Linda, California, USA.
  • Chin EM; Department of Neurology and Pediatrics, Phelps Center for Cerebral Palsy and Neurodevelopmental Medicine, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
  • Fahey M; Department of Paediatrics, Monash University, Monash, Australia.
  • Gelineau-Morel R; Division of Neurology, Children's Mercy Hospital, University of Missouri-Kansas City, Kansas City, Missouri, USA.
  • Himmelmann K; Department of Pediatrics, Clinical Sciences, Sahlgrenska Academy, University of Gothenburg, Gothenburg, Sweden.
  • O'Malley J; Department of Neurology, Stanford University School of Medicine, Palo Alto, California, USA.
  • Oskoui M; Department of Pediatrics, Department of Neurology & Neurosurgery, Centre for Outcomes Research and Evaluation, McGill University Health Center Research Institute, Faculty of Medicine, McGill University, Montreal, Quebec, Canada.
  • Shapiro B; Department of Pediatrics, Johns Hopkins University School of Medicine, Baltimore, Maryland, USA.
  • Shevell M; Emeritus Vice President, Training, Kennedy Krieger Institute, Baltimore, Maryland, USA.
  • Wilson JL; Departments of Pediatrics & Neurology/Neurosurgery, McGill University, Montreal, Canada.
  • Wiznitzer M; Division of Pediatric Neurology, Montreal Children's Hospital, Montreal, Canada.
  • Aravamuthan B; Department of Neurology, Case Western Reserve University School of Medicine, Rainbow Babies & Children's Hospital, Cleveland, Ohio, USA.
Ann Child Neurol Soc ; 1(3): 218-227, 2023 Sep.
Article in En | MEDLINE | ID: mdl-37795255
Objective: "SIGnature Libraries" channel the dynamism of academic society-based special interest groups (SIG) to systematically identify and provide user-oriented access to essential literature for a subspecialty field in a manner that keeps pace with the field's continuing evolution. The libraries include literature beyond clinical trial data to encompass historical context, diagnostic conceptualization, and community organization materials to foster a holistic understanding of how neurologic conditions affect individuals, their community, and their lived experience. Methods: Utilizing a modified-Delphi approach, Child Neurology Society's Cerebral Palsy (CP) SIG (n = 75) administered two rounds of literature submissions and ratings. A final review by an 11-member international advisory group determined threshold ratings for resource inclusion and the library's final structure. Results: Seventy-nine articles were submitted for the first Delphi round and 22 articles for the second Delphi round. Survey response rates among SIG members were 29/75 for the first round and 24/75 for the second round. The advisory board added additional articles in the final review process in view of the overall project goal. A total of 60 articles were included in the final library, and articles were divided into seven sections and stratified by rating scores. A process for ongoing revisions of the library was determined. The library will be published on the Child Neurology Society website and made publicly accessible. Conclusions: The CP SIGnature Library offers learners an unprecedented resource that provides equitable access to latest consensus guidelines, existing seminal datasets, up-to-date review articles, and other patient care tools. A distinctive feature of the library is its intentional large scope and depth, presented in a stratified fashion relative to the consensus-determined importance of each article. Learners can efficiently navigate the library based on individual interests and goals, and the library can be used as core curriculum for CP education.
Key words

Full text: 1 Collection: 01-internacional Database: MEDLINE Type of study: Guideline / Prognostic_studies / Qualitative_research Language: En Journal: Ann Child Neurol Soc Year: 2023 Document type: Article Affiliation country: Estados Unidos Country of publication: Estados Unidos

Full text: 1 Collection: 01-internacional Database: MEDLINE Type of study: Guideline / Prognostic_studies / Qualitative_research Language: En Journal: Ann Child Neurol Soc Year: 2023 Document type: Article Affiliation country: Estados Unidos Country of publication: Estados Unidos