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Involving patients in healthcare research is well documented but can it work in lab-based research?
Connor, Adele E; Hughes, Claire; Schäfer, Lea; McNally, Lorraine; Raw, Deirdre O'; Bahramian, Katayoun; Carr, Bridget; Dunne, Ingrid Halligan; Lysaght, Joanne; Toole, Sharon A O'; Simpson, Jeremy C; Perry, Antoinette S.
Affiliation
  • Connor AE; School of Biology and Environmental Science, University College Dublin, Dublin, Ireland. adele.connor@ucdconnect.ie.
  • Hughes C; Cancer Biology and Therapeutics Laboratory, Conway Institute of Biomolecular and Biomedical Research, University College Dublin, Dublin, Ireland. adele.connor@ucdconnect.ie.
  • Schäfer L; Cell Screening Laboratory, University College Dublin, Dublin, Ireland. adele.connor@ucdconnect.ie.
  • McNally L; School of Biology and Environmental Science, University College Dublin, Dublin, Ireland.
  • Raw DO; Cancer Biology and Therapeutics Laboratory, Conway Institute of Biomolecular and Biomedical Research, University College Dublin, Dublin, Ireland.
  • Bahramian K; School of Biology and Environmental Science, University College Dublin, Dublin, Ireland.
  • Carr B; Cancer Biology and Therapeutics Laboratory, Conway Institute of Biomolecular and Biomedical Research, University College Dublin, Dublin, Ireland.
  • Dunne IH; OvaCare, Cork, Ireland.
  • Lysaght J; OvaCare, Cork, Ireland.
  • Toole SAO; OvaCare, Cork, Ireland.
  • Simpson JC; OvaCare, Cork, Ireland.
  • Perry AS; OvaCare, Cork, Ireland.
Res Involv Engagem ; 9(1): 90, 2023 Oct 12.
Article in En | MEDLINE | ID: mdl-37821914
This piece is co-authored by researchers and ovarian cancer patients and presents their experience of patient involvement in a laboratory-based cancer research project focused on the personalised treatment of high-grade serous ovarian cancer. Discussions with five ovarian cancer patients about their treatment experience highlighted the fact that drugs showing equivalent clinical efficacy are not necessarily tolerated equally by individual patients. This led researchers to alter their original experimental design, by including a number of the same drug type instead of focusing on only one. The researchers also discuss the benefits it has made to both the research and to them as researchers. The patients involved write about their experience, what they enjoyed, and the benefits they felt.
Key words

Full text: 1 Collection: 01-internacional Database: MEDLINE Type of study: Guideline / Qualitative_research Language: En Journal: Res Involv Engagem Year: 2023 Document type: Article Affiliation country: Irlanda Country of publication: Reino Unido

Full text: 1 Collection: 01-internacional Database: MEDLINE Type of study: Guideline / Qualitative_research Language: En Journal: Res Involv Engagem Year: 2023 Document type: Article Affiliation country: Irlanda Country of publication: Reino Unido