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Families' experiences accessing care after genomic sequencing in the pediatric cancer context: "It's just been a big juggle".
Vuocolo, Blake; Gutierrez, Amanda M; Robinson, Jill O; Recinos, Alva M; Desrosiers, Lauren R; Majumder, Mary A; Bernini, Juan Carlos; Gill, Jonathan; Griffin, Timothy; Tomlinson, Gail E; Vallance, Kelly; McGuire, Amy L; Parsons, D Williams; Plon, Sharon E; Scollon, Sarah.
Affiliation
  • Vuocolo B; Department of Molecular and Human Genetics, School of Health Professions, Baylor College of Medicine, Houston, Texas, USA.
  • Gutierrez AM; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA.
  • Robinson JO; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA.
  • Recinos AM; Department of Pediatrics, Baylor College of Medicine, Houston, Texas, USA.
  • Desrosiers LR; Texas Children's Cancer Center, Texas Children's Hospital, Houston, Texas, USA.
  • Majumder MA; Department of Pediatrics, Baylor College of Medicine, Houston, Texas, USA.
  • Bernini JC; Texas Children's Cancer Center, Texas Children's Hospital, Houston, Texas, USA.
  • Gill J; Center for Medical Ethics and Health Policy, Baylor College of Medicine, Houston, Texas, USA.
  • Griffin T; Department of Pediatrics, Baylor College of Medicine, Houston, Texas, USA.
  • Tomlinson GE; Cancer and Hematology Clinic, Vannie E. Cook Clinic, McAllen, Texas, USA.
  • Vallance K; UT MD Anderson Cancer Center, Children's Cancer Hospital, Houston, Texas, USA.
  • McGuire AL; Department of Pediatrics, Baylor College of Medicine, Houston, Texas, USA.
  • Parsons DW; Department of Pediatric Hematology-Oncology, Children's Hospital of San Antonio, San Antonio, Texas, USA.
  • Plon SE; UT Health Science Center, Greehey Children's Cancer Research Institute and Division of Pediatric Hematology-Oncology, San Antonio, Texas, USA.
  • Scollon S; Cook Children's Hematology and Oncology, Cook Children's Hospital, Forth Worth, Texas, USA.
J Genet Couns ; 2024 Jan 15.
Article in En | MEDLINE | ID: mdl-38225886
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Full text: 1 Collection: 01-internacional Database: MEDLINE Type of study: Guideline / Qualitative_research Language: En Journal: J Genet Couns Journal subject: GENETICA MEDICA Year: 2024 Document type: Article Affiliation country: Estados Unidos Country of publication: Estados Unidos
Fulltext
Add to My VHL
Print
XML
PubMed Links
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Full text: 1 Collection: 01-internacional Database: MEDLINE Type of study: Guideline / Qualitative_research Language: En Journal: J Genet Couns Journal subject: GENETICA MEDICA Year: 2024 Document type: Article Affiliation country: Estados Unidos Country of publication: Estados Unidos