Patients' and caregivers' perspectives of the atopic dermatitis journey.
J Dermatolog Treat
; 35(1): 2315145, 2024 Dec.
Article
in En
| MEDLINE
| ID: mdl-38387879
ABSTRACT
BACKGROUND:
Understanding the patient journey is important to optimize care for patients with atopic dermatitis (AD) and overcome challenges in diagnosis and management.OBJECTIVE:
To explore patient and caregiver perspectives regarding their experience with AD.METHODS:
Patients and caregivers of patients with AD completed a pre-meeting survey and were invited to join an advisory board meeting in their country (China, Hong Kong, Ireland, Japan and Lebanon) to discuss the survey results. Data were analyzed descriptively.RESULTS:
The survey included 31 participants (patients and caregivers) from Hong Kong (n = 7), China (n = 7), Ireland (n = 6), Japan (n = 6) and Lebanon (n = 5). The most challenging factors in the AD journey were management of symptoms before a confirmed diagnosis (68%), sudden recurrence of flares or worsening of symptoms (68%) and lifestyle changes (52%). In terms of overall AD management, 35% of participants indicated that AD was managed well, 23% had a clear treatment plan and 19% were generally satisfied with disease management. A collaborative relationship with healthcare professionals was favored.CONCLUSION:
A holistic assessment of AD includes understanding patient and caregiver preferences, needs, experiences and disease perceptions. Addressing the identified gaps may improve the management of AD.Key words
Full text:
1
Collection:
01-internacional
Database:
MEDLINE
Main subject:
Caregivers
/
Dermatitis, Atopic
Limits:
Humans
Language:
En
Journal:
J Dermatolog Treat
Journal subject:
DERMATOLOGIA
Year:
2024
Document type:
Article
Affiliation country:
Estados Unidos