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The CARMEN-France registry of adult patients with immune thrombocytopenia and autoimmune hemolytic anemia in France.
Moulis, Guillaume; Michel, Marc; Bonnotte, Bernard; Godeau, Bertrand.
Affiliation
  • Moulis G; Service de médecine interne, centre de référence constitutif des cytopénies auto-immunes de l'adulte, CHU de Toulouse, Toulouse, France; CIC 1436, CHU de Toulouse, Toulouse, France. Electronic address: moulis.g@chu-toulouse.fr.
  • Michel M; Service de médecine interne, centre de référence coordonnateur des cytopénies auto-immunes de l'adulte, CHU Henri-Mondor, AP-HP, Créteil, France.
  • Bonnotte B; Service de médecine interne, centre de référence constitutif des cytopénies auto-immunes de l'adulte, CHU de Dijon, Dijon, France.
  • Godeau B; Service de médecine interne, centre de référence coordonnateur des cytopénies auto-immunes de l'adulte, CHU Henri-Mondor, AP-HP, Créteil, France.
Rev Med Interne ; 45(9): 543-548, 2024 Sep.
Article in En | MEDLINE | ID: mdl-38960844
ABSTRACT
The CARMEN-France registry is a prospective, multicenter registry in France including adult patients with a new diagnosis of immune thrombocytopenia or of autoimmune immune hemolytic anemia (2402 patients included in December 31, 2023). The recording of clinical, biological and treatment data allows detailed epidemiological and pharmacoepidemiological real-world studies. This review summarizes the CARMEN-France registry protocol, gives examples of studies conducted in the registry, and indicates future directions such as inclusion of patient reported outcomes, linkage with the French national health insurance database and linkage with other registries in Europe.
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Registries / Purpura, Thrombocytopenic, Idiopathic / Anemia, Hemolytic, Autoimmune Limits: Adult / Female / Humans / Male Country/Region as subject: Europa Language: En Journal: Rev Med Interne Year: 2024 Document type: Article Country of publication: Francia
Fulltext
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Registries / Purpura, Thrombocytopenic, Idiopathic / Anemia, Hemolytic, Autoimmune Limits: Adult / Female / Humans / Male Country/Region as subject: Europa Language: En Journal: Rev Med Interne Year: 2024 Document type: Article Country of publication: Francia