[Cancer diagnosis: do we want to know the truth?]. / Diagnóstico: cáncer. 'Queremos conocer la verdad?

ABSTRACT

OBJECTIVE: To find people's desire for information and their other attitudes when faced with a cancer diagnosis. DESIGN: Transversal, descriptive study. SETTING: Irun, Oñati and Asteasu Health Centres, Gipuzkoa, Spain. PARTICIPANTS: From the appointments for 19 clinics in March-May 2002, a randomised, prospective and systematic sample, stratified by lists, was extracted (n=725). A modified Fernández Díaz questionnaire was administered. It had personal details and 8 questions with closed replies on aspects of communication (5) and attitudes to death (3). RESULTS: 81.3% (95% CI, 78.4-84.1) wanted to know their diagnosis. 68.9% (95% CI, 65.5-72.2) chose the doctor to tell them. Of these, 36.6% chose the specialist and 26.6%, the general practitioner. If the person affected was a family member, 46.6% (95% CI, 42.9-50.2) would always tell the person; 38.6% (95% CI, 35-42.1), only if the person asked; and 9.6%, never (95% CI, 7.4-11.7). 49.3% (95% CI, 45.6-52.9) would prefer to die at home. The greatest fear for 44% (95% CI, 40.3-47.6) was pain. CONCLUSIONS: Most people want to be informed of their diagnosis. Neither an urban or rural environment nor having had family members with cancer affects their view. If the person affected by cancer is a family member, very few people favour not telling him/her at all. Sufferers want the doctor to tell them the information, prefer to die at home and pain is what worries them most.