The European Prader-Willi Syndrome Clinical Research Database: an aid in the investigation of a rare genetically determined neurodevelopmental disorder.

Holland, A; Whittington, J; Cohen, O; Curfs, L; Delahaye, F; Dudley, O; Horsthemke, B; Lindgren, A-C; Nourissier, C; Sharma, N; Vogels, A

Holland, A; Whittington, J; Cohen, O; Curfs, L; Delahaye, F; Dudley, O; Horsthemke, B; Lindgren, A-C; Nourissier, C; Sharma, N; Vogels, A.

Affiliation

Holland A; Department of Psychiatry, University of Cambridge, Cambridge, UK.

J Intellect Disabil Res ; 53(6): 538-47, 2009 Jun.

Article in En | MEDLINE | ID: mdl-19457156

Subject(s)

Biomedical Research; Databases as Topic/organization & administration; European Union; Internet; Prader-Willi Syndrome/diagnosis; Prader-Willi Syndrome/genetics; Adult; Algorithms; Child; Cross-Cultural Comparison; Cross-Sectional Studies; Data Collection/statistics & numerical data; Europe; Humans; Longitudinal Studies; Phenotype; Prader-Willi Syndrome/epidemiology; Software

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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Prader-Willi Syndrome / Databases as Topic / Internet / Biomedical Research / European Union Type of study: Observational_studies / Prevalence_studies / Prognostic_studies / Risk_factors_studies Aspects: Ethics Limits: Adult / Child / Humans Country/Region as subject: Europa Language: En Journal: J Intellect Disabil Res Journal subject: TRANSTORNOS MENTAIS Year: 2009 Document type: Article Affiliation country: United kingdom

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