Effecting positive change with bereaved service users in a hospice setting.
Int J Palliat Nurs
; 15(3): 110, 112, 114-8, 2009 Mar.
Article
in En
| MEDLINE
| ID: mdl-19537531
ABSTRACT
User involvement is now an internationally established feature of health and social care, service planning and delivery. This paper discusses the background context of user involvement as a prelude to describing the processes pursued in changing communication systems for bereaved service users. This qualitative study aimed to gain a deeper understanding of service user experiences of an adult bereavement group in a hospice setting in Northern Ireland. The key focus of the study was the development of a bereavement information leaflet. To achieve this, a one-off focus group meeting with seven users who were purposively selected based on their previous experience of bereavement services was held. The findings are presented using a thematic content analysis approach. These illustrate the experiences of service users and their recommendations, which informed the content and language of a new information leaflet. This paper demonstrates how service user participation can inform changes to service delivery in a manner that avoids the potential for consultation fatigue and tokenism.
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Collection:
01-internacional
Database:
MEDLINE
Main subject:
Self-Help Groups
/
Bereavement
/
Community Participation
/
Needs Assessment
/
Hospices
Type of study:
Qualitative_research
Limits:
Aged
/
Humans
/
Middle aged
Country/Region as subject:
Europa
Language:
En
Journal:
Int J Palliat Nurs
Journal subject:
ENFERMAGEM
Year:
2009
Document type:
Article
Affiliation country:
Ireland