A ski and adventure camp for young patients with severe forms of epidermolysis bullosa.

Nading, Mary Alice; Lahmar, Julien J; Frew, John W; Ghionis, Nicholas; Hanley, Martin; Welch, Anna Kemble; Murrell, Dedee F

Nading, Mary Alice; Lahmar, Julien J; Frew, John W; Ghionis, Nicholas; Hanley, Martin; Welch, Anna Kemble; Murrell, Dedee F.

Affiliation

Nading MA; Department of Medicine, Memorial Sloan-Kettering Cancer Center, New York, New York, USA.

J Am Acad Dermatol ; 61(3): 508-11, 2009 Sep.

Article in En | MEDLINE | ID: mdl-19700016

Subject(s)

Camping; Epidermolysis Bullosa/rehabilitation; Skiing; Adolescent; Adult; Female; Fund Raising; Humans; Male; New Zealand; Program Evaluation; Severity of Illness Index; Ships; Volunteers; Wheelchairs; Young Adult

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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Skiing / Camping / Epidermolysis Bullosa Type of study: Evaluation_studies Limits: Adolescent / Adult / Female / Humans / Male Country/Region as subject: Oceania Language: En Journal: J Am Acad Dermatol Year: 2009 Document type: Article Affiliation country: United States

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