Psychosocial care for the caregivers of primary malignant brain tumor patients.
J Soc Work End Life Palliat Care
; 9(1): 74-95, 2013.
Article
in En
| MEDLINE
| ID: mdl-23438646
ABSTRACT
Despite clinical experience that suggests a high burden of care among relatives of individuals with a primary malignant brain tumor (PMBT), little is known about their actual needs. In this study, the caregivers' personal experiences, quality of life, burden of care, and psychological well-being were examined. Fifty-nine percent did not receive any financial aid for home care, 33% had increased risk for psychosomatic problems, 45% had anxiety, and 33% increased depression levels. The caregiver's quality of life was most strongly affected by the burden of care (p < .001) and the patient's mental state (p < .03). To improve the situation, empathetic professionals and an early implementation of palliative care and social work are required.
Full text:
1
Collection:
01-internacional
Database:
MEDLINE
Main subject:
Quality of Life
/
Social Support
/
Brain Neoplasms
/
Adaptation, Psychological
/
Caregivers
/
Needs Assessment
Type of study:
Qualitative_research
Aspects:
Determinantes_sociais_saude
/
Patient_preference
Limits:
Adult
/
Aged
/
Aged80
/
Female
/
Humans
/
Male
/
Middle aged
Country/Region as subject:
Europa
Language:
En
Journal:
J Soc Work End Life Palliat Care
Journal subject:
CIENCIAS SOCIAIS
Year:
2013
Document type:
Article
Affiliation country:
Germany