Dissociations in the meaning of risk between health-care professionals and individuals with spinal cord injury.
Spinal Cord
; 51(12): 909-12, 2013 Dec.
Article
in En
| MEDLINE
| ID: mdl-24042987
ABSTRACT
OBJECTIVE:
Risks have been a central concern in stem cell research overall, and in clinical trials of individuals with spinal cord injury (ISCIs) in particular. We sought to elucidate how two important stakeholder groups-health-care professionals (HCPs) and ISCIs-view and value both the physical and non-physical risks of stem cell interventions.SETTING:
The study was conducted in Canada, and included participants from both Canada and the United States America. STUDYDESIGN:
We used semi-structured interviews to gain perspectives on risk from HCPs and ISCIs.METHODS:
We applied a constant comparative analytic strategy to derive themes from the discourse collected through the interviews.RESULTS:
We identified three major themes about risk from 12 HCP and 24 ISCIparticipants:
focus, rationale and approach. The salient components of the themes differed HCPs focus on the physical causes of risks, and the ISCIs on their downstream consequences as well as on non-physical risks; HCPs are concerned about evidence, and ISCIs about experience; and HCPs approach risk narrowly, whereas the approach of ISCIs is more broad and contextualized.CONCLUSION:
Although major themes were common to the two stakeholder groups, the components of the themes were dissociable and illustrate differences in what HCPs and ISCIs worry about, why they worry and how they approach their worries. We draw upon these findings to make recommendations for improving risk communication and informed consent for stem cell research for spinal cord injury.
Full text:
1
Collection:
01-internacional
Database:
MEDLINE
Main subject:
Professional-Patient Relations
/
Spinal Cord Injuries
/
Risk
/
Health Personnel
Type of study:
Etiology_studies
/
Guideline
/
Prognostic_studies
/
Qualitative_research
Limits:
Female
/
Humans
/
Male
/
Middle aged
Country/Region as subject:
America do norte
Language:
En
Journal:
Spinal Cord
Journal subject:
NEUROLOGIA
Year:
2013
Document type:
Article
Affiliation country:
Canada