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Practical guidance on informed consent for pediatric participants in a biorepository.
Brothers, Kyle B; Lynch, John A; Aufox, Sharon A; Connolly, John J; Gelb, Bruce D; Holm, Ingrid A; Sanderson, Saskia C; McCormick, Jennifer B; Williams, Janet L; Wolf, Wendy A; Antommaria, Armand H M; Clayton, Ellen W.
Affiliation
  • Brothers KB; Department of Pediatrics, University of Louisville School of Medicine, Louisville, KY. Electronic address: kyle.brothers@louisville.edu.
  • Lynch JA; Department of Communication, University of Cincinnati, Cincinnati, OH.
  • Aufox SA; Center for Genetic Medicine, Northwestern University Feinberg School of Medicine, Chicago, IL.
  • Connolly JJ; Center for Applied Genomics, Children's Hospital of Philadelphia, Philadelphia, PA.
  • Gelb BD; Mindich Child Health and Development Institute, Icahn School of Medicine at Mount Sinai, New York, NY.
  • Holm IA; Division of Genetics and Genomics and The Manton Center for Orphan Disease Research, Boston Children's Hospital, and Harvard Medical School, Boston, MA.
  • Sanderson SC; Department of Genetic and Genomics Sciences, Icahn School of Medicine at Mount Sinai, New York, NY.
  • McCormick JB; Divisions of General Internal Medicine and Health Care and Policy Research and the Mayo Biomedical Ethics Program, Mayo Clinic, Rochester, MN.
  • Williams JL; Genomic Medicine Institute, Geisinger Health System, Danville, PA.
  • Wolf WA; Division of Genetics and Genomics, Boston Children's Hospital, Boston, MA.
  • Antommaria AH; Ethics Center, Cincinnati Children's Hospital Medical Center, Cincinnati, OH.
  • Clayton EW; Center for Biomedical Ethics and Society, Vanderbilt University Medical Center, Nashville, TN.
Mayo Clin Proc ; 89(11): 1471-80, 2014 Nov.
Article in En | MEDLINE | ID: mdl-25264176
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Child Welfare / Biological Specimen Banks / Genetic Research / Parental Consent / Informed Consent Type of study: Guideline Limits: Adolescent / Child / Humans Country/Region as subject: America do norte Language: En Journal: Mayo Clin Proc Year: 2014 Document type: Article Country of publication: United kingdom
Fulltext
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Child Welfare / Biological Specimen Banks / Genetic Research / Parental Consent / Informed Consent Type of study: Guideline Limits: Adolescent / Child / Humans Country/Region as subject: America do norte Language: En Journal: Mayo Clin Proc Year: 2014 Document type: Article Country of publication: United kingdom