Lost in translation? How adults living with Cystic Fibrosis understand treatment recommendations from their healthcare providers, and the impact on adherence to therapy.
Patient Educ Couns
; 99(8): 1319-24, 2016 08.
Article
in En
| MEDLINE
| ID: mdl-27036082
ABSTRACT
OBJECTIVE:
This study builds on the limited research documenting Cystic Fibrosis (CF) patients' understanding of treatment recommendations and how this may impact adherence to therapy.METHODS:
We surveyed adults with CF and their healthcare professional (HCP) to capture treatment recommendations provided by the HCP, and patients' knowledge, and frequency of performance, of these recommendations. We classified CF participants' understanding of treatment recommendations (correct/incorrect) as compared to the actual recommendations made by the HCP. We computed CF participants' adherence in relation to HCP treatment recommendations and to their own understanding of treatment recommendations (adherent/non-adherent).RESULTS:
Complete HCP and patient data were available for 42 participants. The recommended treatment frequency was correctly understood by 0%-87.8% of CF participants. Adherence to HCP treatment recommendations ranged from 0 to 68.3% (mean 45.4%±21.5), and rates were low (<33%) for acapella, percussion/postural drainage, tobramycin nebulization and insulin. Participants' adherence was greater when calculated in relation to participants' understanding of treatment recommendations (62.4%±25.1) than when calculated in relation to actual HCP treatment recommendations (45.4%±21.5%) (p=0.009). CONCLUSION AND PRACTICE IMPLICATIONS Adults with CF misunderstand treatment recommendations; this likely affects treatment adherence. Interventions to ensure HCPs use effective communication strategies are needed.Key words
Full text:
1
Collection:
01-internacional
Database:
MEDLINE
Main subject:
Patient Education as Topic
/
Patient Compliance
/
Health Personnel
/
Communication
/
Cystic Fibrosis
Type of study:
Guideline
/
Qualitative_research
Aspects:
Implementation_research
Limits:
Adult
/
Female
/
Humans
/
Male
Language:
En
Journal:
Patient Educ Couns
Year:
2016
Document type:
Article
Publication country:
IE
/
IRELAND
/
IRLANDA