The Influence of Education on Public Trust and Consent Preferences With Residual Newborn Screening Dried Blood spots.
J Empir Res Hum Res Ethics
; 11(3): 231-6, 2016 07.
Article
in En
| MEDLINE
| ID: mdl-27387457
ABSTRACT
The objectives of this study were to evaluate the impact of educational interventions during prenatal care on public trust for newborn screening and consent preferences for the retention and use of leftover newborn screening dried blood spots. Women who were 30 to 36 weeks pregnant were recruited, and outcomes were measured by telephone survey 2 to 4 weeks postpartum (n = 901). Approximately 40% of the sample chose the opt-out approach but those who watched educational interventions delivered during prenatal care were significantly associated with higher levels of trust and support for an opt-out consent approach. Providing education during prenatal care about newborn screening and the storage and use of leftover dried blood spots along with brochure-based education provided in the hospital when the baby is born is associated with improved trust for the program and support for research with the leftover blood spots.
Key words
Full text:
1
Collection:
01-internacional
Database:
MEDLINE
Main subject:
Attitude
/
Health Education
/
Neonatal Screening
/
Biological Specimen Banks
/
Trust
/
Biomedical Research
/
Parental Consent
Type of study:
Clinical_trials
/
Diagnostic_studies
/
Screening_studies
Aspects:
Patient_preference
Limits:
Adult
/
Female
/
Humans
/
Infant
/
Newborn
Language:
En
Journal:
J Empir Res Hum Res Ethics
Journal subject:
ETICA
Year:
2016
Document type:
Article
Affiliation country:
United States