Survey of the Huntington's Disease Patient and Caregiver Community Reveals Most Impactful Symptoms and Treatment Needs.

Simpson, Jennifer A; Lovecky, Debra; Kogan, Jane; Vetter, Louise A; Yohrling, George J

Simpson, Jennifer A; Lovecky, Debra; Kogan, Jane; Vetter, Louise A; Yohrling, George J.

Affiliation

Simpson JA; Huntington's Disease Society of America (HDSA), New York, NY, USA.
Lovecky D; Huntington's Disease Society of America (HDSA), New York, NY, USA.
Kogan J; American Board of Perianesthesia Nursing Certification, Inc., New York, NY, USA.
Vetter LA; Huntington's Disease Society of America (HDSA), New York, NY, USA.
Yohrling GJ; Huntington's Disease Society of America (HDSA), New York, NY, USA.

J Huntingtons Dis ; 5(4): 395-403, 2016 12 15.

Article in En | MEDLINE | ID: mdl-27983566

Subject(s)

Caregivers/psychology; Huntington Disease/psychology; Huntington Disease/therapy; Activities of Daily Living; Anxiety; Behavioral Symptoms; Chorea; Cognition; Cost of Illness; Depression; Humans; Huntington Disease/physiopathology; Middle Aged; Surveys and Questionnaires

Key words

Food and Drug Administration; Huntington's disease; caregivers; chorea; cognition; dysexecutive syndrome; patient-reported outcomes; psychiatric; symptoms; treatments

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Collection: 01-internacional Database: MEDLINE Main subject: Caregivers / Huntington Disease Type of study: Diagnostic_studies / Qualitative_research Aspects: Patient_preference Limits: Humans / Middle aged Language: En Journal: J Huntingtons Dis Year: 2016 Document type: Article Affiliation country: United States Country of publication: Netherlands

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