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International multi-site survey on the use of online support groups in bipolar disorder.
Bauer, Rita; Conell, Jörn; Glenn, Tasha; Alda, Martin; Ardau, Raffaella; Baune, Bernhard T; Berk, Michael; Bersudsky, Yuly; Bilderbeck, Amy; Bocchetta, Alberto; Bossini, Letizia; Castro, Angela M Paredes; Cheung, Eric Y W; Chillotti, Caterina; Choppin, Sabine; Zompo, Maria Del; Dias, Rodrigo; Dodd, Seetal; Duffy, Anne; Etain, Bruno; Fagiolini, Andrea; Hernandez, Miryam Fernández; Garnham, Julie; Geddes, John; Gildebro, Jonas; Gonzalez-Pinto, Ana; Goodwin, Guy M; Grof, Paul; Harima, Hirohiko; Hassel, Stefanie; Henry, Chantal; Hidalgo-Mazzei, Diego; Kapur, Vaisnvy; Kunigiri, Girish; Lafer, Beny; Larsen, Erik R; Lewitzka, Ute; Licht, Rasmus W; Hvenegaard Lund, Anne; Misiak, Blazej; Piotrowski, Patryk; Monteith, Scott; Munoz, Rodrigo; Nakanotani, Takako; Nielsen, René E; O'donovan, Claire; Okamura, Yasushi; Osher, Yamima; Reif, Andreas; Ritter, Philipp.
Affiliation
  • Bauer R; a Department of Psychiatry and Psychotherapy , Universitätsklinikum Carl Gustav Carus, Technische Universität Dresden , Germany.
  • Conell J; a Department of Psychiatry and Psychotherapy , Universitätsklinikum Carl Gustav Carus, Technische Universität Dresden , Germany.
  • Glenn T; b AMEOS Klinika Holstein , Neustadt , Germany.
  • Alda M; c ChronoRecord Association , Fullerton , CA , USA.
  • Ardau R; d Department of Psychiatry , Dalhousie University , Halifax , Nova Scotia , Canada.
  • Baune BT; e Unit of Clinical Pharmacology , University Hospital of Cagliari , Cagliari , Italy.
  • Berk M; f Discipline of Psychiatry, School of Medicine , University of Adelaide , Adelaide , SA , Australia.
  • Bersudsky Y; g IMPACT Strategic Research Centre, School of Medicine , Deakin University , Geelong , VIC , Australia.
  • Bilderbeck A; h University Hospital Geelong, Barwon Health , Geelong , VIC , Australia.
  • Bocchetta A; i Department of Psychiatry , The University of Melbourne , Parkville , VIC , Australia.
  • Bossini L; j Florey Institute of Neuroscience and Mental Health , Parkville , VIC , Australia.
  • Castro AMP; k Orygen Youth Health Research Centre , Parkville , VIC , Australia.
  • Cheung EYW; l Department of Psychiatry, Faculty of Health Sciences , Ben Gurion University of the Negev, Beer Sheva Mental Health Center , Beer Sheva , Israel.
  • Chillotti C; m Department of Psychiatry , University of Oxford, Warneford Hospital , Oxford , UK.
  • Choppin S; n Section of Neurosciences and Clinical Pharmacology, Department of Biomedical Sciences , University of Cagliari , Sardinia , Italy.
  • Zompo MD; o Department of Molecular Medicine and Department of Mental Health (DAI) , University of Siena and University of Siena Medical Center (AOUS) , Siena , Italy.
  • Dias R; g IMPACT Strategic Research Centre, School of Medicine , Deakin University , Geelong , VIC , Australia.
  • Dodd S; h University Hospital Geelong, Barwon Health , Geelong , VIC , Australia.
  • Duffy A; p Department of General Adult Psychiatry , Castle Peak Hospital , Hong Kong , PR China.
  • Etain B; e Unit of Clinical Pharmacology , University Hospital of Cagliari , Cagliari , Italy.
  • Fagiolini A; q AP-HP , Hôpitaux Universitaires Henri-Mondor , Créteil , France.
  • Hernandez MF; n Section of Neurosciences and Clinical Pharmacology, Department of Biomedical Sciences , University of Cagliari , Sardinia , Italy.
  • Garnham J; r Bipolar Disorder Research Program, Department of Psychiatry , University of São Paulo Medical School , São Paulo , Brazil.
  • Geddes J; g IMPACT Strategic Research Centre, School of Medicine , Deakin University , Geelong , VIC , Australia.
  • Gildebro J; h University Hospital Geelong, Barwon Health , Geelong , VIC , Australia.
  • Gonzalez-Pinto A; i Department of Psychiatry , The University of Melbourne , Parkville , VIC , Australia.
  • Goodwin GM; s Department of Psychiatry , University of Calgary , Calgary , Canada.
  • Grof P; t AP-HP , Hôpitaux Universitaires Henri-Mondor, INSERM U955 (IMRB), Université Paris Est , Créteil , France.
  • Harima H; o Department of Molecular Medicine and Department of Mental Health (DAI) , University of Siena and University of Siena Medical Center (AOUS) , Siena , Italy.
  • Hassel S; u Department of Psychiatry , University Hospital of Alava, University of the Basque Country, CIBERSAM , Vitoria , Spain.
  • Henry C; d Department of Psychiatry , Dalhousie University , Halifax , Nova Scotia , Canada.
  • Hidalgo-Mazzei D; m Department of Psychiatry , University of Oxford, Warneford Hospital , Oxford , UK.
  • Kapur V; v Department of Affective Disorders, Q, Mood Disorders Research Unit , Aarhus University Hospital , Aarhus , Denmark.
  • Kunigiri G; u Department of Psychiatry , University Hospital of Alava, University of the Basque Country, CIBERSAM , Vitoria , Spain.
  • Lafer B; m Department of Psychiatry , University of Oxford, Warneford Hospital , Oxford , UK.
  • Larsen ER; w Mood Disorders Center of Ottawa , Ottawa , Canada.
  • Lewitzka U; x Department of Psychiatry , University of Toronto , Ontario , Canada.
  • Licht RW; y Department of Psychiatry , Tokyo Metropolitan Matsuzawa Hospital , Tokyo , Japan.
  • Hvenegaard Lund A; z Department of Psychology & Aston Brain Centre , Aston University , Birmingham , UK.
  • Misiak B; t AP-HP , Hôpitaux Universitaires Henri-Mondor, INSERM U955 (IMRB), Université Paris Est , Créteil , France.
  • Piotrowski P; aa Unité Perception et Mémoire , Institut Pasteur , Paris , France.
  • Monteith S; ab Bipolar Disorders Program , Hospital Clinic, University of Barcelona, IDIBAPS, CIBERSAM , Barcelona , Catalonia , Spain.
  • Munoz R; ac Department of Clinical Psychology , NIMHANS , Bangalore , India.
  • Nakanotani T; ad Leicestershire Partnership NHS Trust , Leicester , UK.
  • Nielsen RE; r Bipolar Disorder Research Program, Department of Psychiatry , University of São Paulo Medical School , São Paulo , Brazil.
  • O'donovan C; v Department of Affective Disorders, Q, Mood Disorders Research Unit , Aarhus University Hospital , Aarhus , Denmark.
  • Okamura Y; a Department of Psychiatry and Psychotherapy , Universitätsklinikum Carl Gustav Carus, Technische Universität Dresden , Germany.
  • Osher Y; ae Psychiatry , Aalborg University Hospital , Aalborg , Denmark.
  • Reif A; af Department of Clinical Medicine , Aalborg University , Aalborg , Denmark.
  • Ritter P; v Department of Affective Disorders, Q, Mood Disorders Research Unit , Aarhus University Hospital , Aarhus , Denmark.
Nord J Psychiatry ; 71(6): 473-476, 2017 Aug.
Article in En | MEDLINE | ID: mdl-28696841
ABSTRACT

BACKGROUND:

Peer support is an established component of recovery from bipolar disorder, and online support groups may offer opportunities to expand the use of peer support at the patient's convenience. Prior research in bipolar disorder has reported value from online support groups.

AIMS:

To understand the use of online support groups by patients with bipolar disorder as part of a larger project about information seeking.

METHODS:

The results are based on a one-time, paper-based anonymous survey about information seeking by patients with bipolar disorder, which was translated into 12 languages. The survey was completed between March 2014 and January 2016 and included questions on the use of online support groups. All patients were diagnosed by a psychiatrist. Analysis included descriptive statistics and general estimating equations to account for correlated data. RESULTS AND

CONCLUSIONS:

The survey was completed by 1222 patients in 17 countries. The patients used the Internet at a percentage similar to the general public. Of the Internet users who looked online for information about bipolar disorder, only 21.0% read or participated in support groups, chats, or forums for bipolar disorder (12.8% of the total sample). Given the benefits reported in prior research, clarification of the role of online support groups in bipolar disorder is needed. With only a minority of patients using online support groups, there are analytical challenges for future studies.
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Self-Help Groups / Bipolar Disorder / Surveys and Questionnaires / Internet / Internationality Type of study: Qualitative_research Limits: Adult / Female / Humans / Male / Middle aged Language: En Journal: Nord J Psychiatry Journal subject: PSICOFARMACOLOGIA / PSIQUIATRIA Year: 2017 Document type: Article Affiliation country: Germany
Fulltext
Add to My VHL
Print
XML
PubMed Links
Search on Google

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Self-Help Groups / Bipolar Disorder / Surveys and Questionnaires / Internet / Internationality Type of study: Qualitative_research Limits: Adult / Female / Humans / Male / Middle aged Language: En Journal: Nord J Psychiatry Journal subject: PSICOFARMACOLOGIA / PSIQUIATRIA Year: 2017 Document type: Article Affiliation country: Germany