Life impact of caregiving for severe childhood epilepsy: Results of expert panels and caregiver focus groups.

Jensen, Mark P; Liljenquist, Kendra S; Bocell, Fraser; Gammaitoni, Arnold R; Aron, Carey R; Galer, Bradley S; Amtmann, Dagmar

Jensen, Mark P; Liljenquist, Kendra S; Bocell, Fraser; Gammaitoni, Arnold R; Aron, Carey R; Galer, Bradley S; Amtmann, Dagmar.

Affiliation

Jensen MP; Department of Rehabilitation Medicine, University of Washington, Seattle, WA, USA. Electronic address: mjensen@uw.edu.
Liljenquist KS; Department of Rehabilitation Medicine, University of Washington, Seattle, WA, USA.
Bocell F; Department of Rehabilitation Medicine, University of Washington, Seattle, WA, USA.
Gammaitoni AR; Medical and Scientific Affairs, Zogenix, Inc., Emeryville, CA, USA.
Aron CR; Medical and Scientific Affairs, Zogenix, Inc., Emeryville, CA, USA.
Galer BS; Medical and Scientific Affairs, Zogenix, Inc., Emeryville, CA, USA.
Amtmann D; Department of Rehabilitation Medicine, University of Washington, Seattle, WA, USA.

Epilepsy Behav ; 74: 135-143, 2017 09.

Article in En | MEDLINE | ID: mdl-28734197

Subject(s)

Caregivers/psychology; Epilepsy; Quality of Life/psychology; Adult; Child; Cost of Illness; Female; Focus Groups; Humans; Middle Aged; Surveys and Questionnaires

Key words

Caregiver burden; Dravet syndrome; Severe childhood epilepsy; Severe myoclonic epilepsy in infancy

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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Quality of Life / Caregivers / Epilepsy Type of study: Prognostic_studies / Qualitative_research Aspects: Patient_preference Limits: Adult / Child / Female / Humans / Middle aged Language: En Journal: Epilepsy Behav Journal subject: CIENCIAS DO COMPORTAMENTO / NEUROLOGIA Year: 2017 Document type: Article Country of publication: United States

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