Supportive & palliative interventions in motor neurone disease: what we know from current literature?
Ann Palliat Med
; 7(3): 320-331, 2018 Jul.
Article
in En
| MEDLINE
| ID: mdl-29156920
ABSTRACT
Although there is no cure for motor neurone disease (MND), the advent of supportive interventions including multidisciplinary care (MDC) has improved treatment interventions and enhanced quality of life (QOL) for MND patients and their carers. Our integrative review showed evidence-based MDC, respiratory management and disease-modifying therapy that have improved the outcomes of patients diagnosed with MND. Supportive approaches to nutritional maintenance and optimization of symptomatic treatments, including management of communication and neuropsychiatric issues, improve the QOL for MND patients. Notwithstanding improvement to care and QOL, survival benefit has become evident with the advent of a MDC framework, early treatment with non-invasive ventilation (NIV). In addition, weight maintenance remains critical, as weight loss is associated with more rapid disease progression. The endof- life phase is poorly defined in MND patients and treatment remains challenging, yet effective symptom control through palliative care (PC) is achievable and essential.
Key words
Full text:
1
Collection:
01-internacional
Database:
MEDLINE
Main subject:
Palliative Care
/
Motor Neuron Disease
Aspects:
Patient_preference
Limits:
Humans
Language:
En
Journal:
Ann Palliat Med
Year:
2018
Document type:
Article
Affiliation country:
China