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A mobile app for patients with Pompe disease and its possible clinical applications.
Ricci, Giulia; Baldanzi, Sigrid; Seidita, Fabrizio; Proietti, Chiara; Carlini, Francesca; Peviani, Silvia; Antonini, Giovanni; Vianello, Andrea; Siciliano, Gabriele.
Affiliation
  • Ricci G; Department of Clinical and Experimental Medicine, University of Pisa, via Roma 67, 56126 Pisa, Italy.
  • Baldanzi S; Department of Clinical and Experimental Medicine, University of Pisa, via Roma 67, 56126 Pisa, Italy.
  • Seidita F; Associazione Italiana Glicogenosi - ONLUS, Via Roma 2/G, 20090 Assago (Milan), Italy.
  • Proietti C; Vidiemme Consulting s.r.l, Via Natale Battaglia 8, 20127 Milan, Italy.
  • Carlini F; Vidiemme Consulting s.r.l, Via Natale Battaglia 8, 20127 Milan, Italy.
  • Peviani S; Vidiemme Consulting s.r.l, Via Natale Battaglia 8, 20127 Milan, Italy.
  • Antonini G; Department of Neurology, S. Andrea Hospital, University of Rome "Sapienza", via Grottarossa 1035, 00189 Rome, Italy.
  • Vianello A; Department of Cardio-Thoracic, Respiratory Pathophysiology Division, University-City Hospital of Padova, Via Giustiniani 2, Padova, Italy.
  • Siciliano G; Department of Clinical and Experimental Medicine, University of Pisa, via Roma 67, 56126 Pisa, Italy. Electronic address: gabriele.siciliano@med.unipi.it.
Neuromuscul Disord ; 28(6): 471-475, 2018 06.
Article in En | MEDLINE | ID: mdl-29655528
ABSTRACT
In recent years, the potential of smart technology to provide innovative solutions for disease management has raised high expectations for patients' and healthcare professionals' community. We developed a mobile app, called AIGkit, specifically designed for adult patients with Pompe disease, with the aim to help them manage the burden of illness-related factors, and also to provide clinicians with continuous tracking of each patient in real-time and ambient conditions of everyday life. We present the AIGkit as an innovative approach exploiting cutting-edge technology to improve quality of care and research into neuromuscular disorders.
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Quality of Life / Glycogen Storage Disease Type II / Mobile Applications / Self-Management Aspects: Patient_preference Limits: Adult / Humans Language: En Journal: Neuromuscul Disord Journal subject: NEUROLOGIA Year: 2018 Document type: Article Affiliation country: Italy
Fulltext
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Quality of Life / Glycogen Storage Disease Type II / Mobile Applications / Self-Management Aspects: Patient_preference Limits: Adult / Humans Language: En Journal: Neuromuscul Disord Journal subject: NEUROLOGIA Year: 2018 Document type: Article Affiliation country: Italy