OMERACT 2018 Modified Patient-reported Outcome Domain Core Set in the Life Impact Area for Adult Idiopathic Inflammatory Myopathies.
J Rheumatol
; 46(10): 1351-1354, 2019 10.
Article
in En
| MEDLINE
| ID: mdl-30770504
ABSTRACT
OBJECTIVE:
To present and vote on a myositis modified patient-reported outcome core domain set in the life impact area at the Outcome Measures in Rheumatology (OMERACT) 2018.METHODS:
Based on results from international focus groups and Delphi surveys, a draft core set was developed.RESULTS:
Domains muscle symptoms, fatigue, level of physical activity, and pain reached ≥ 70% consensus and were mandatory to assess in all trials. Domains lung, joint, and skin symptoms were mandatory in specific circumstances. This core set was endorsed by > 85% at OMERACT 2018.CONCLUSION:
We propose a life impact core set for patients with idiopathic inflammatory myopathies and will proceed with instrument selections.Key words
Full text:
1
Collection:
01-internacional
Database:
MEDLINE
Main subject:
Quality of Life
/
Outcome Assessment, Health Care
/
Patient Reported Outcome Measures
/
Myositis
Type of study:
Guideline
/
Qualitative_research
Aspects:
Patient_preference
Limits:
Adult
/
Aged
/
Female
/
Humans
/
Male
/
Middle aged
Language:
En
Journal:
J Rheumatol
Year:
2019
Document type:
Article