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The International Hereditary Thrombotic Thrombocytopenic Purpura Registry: key findings at enrollment until 2017.
van Dorland, Hendrika A; Taleghani, Magnus Mansouri; Sakai, Kazuya; Friedman, Kenneth D; George, James N; Hrachovinova, Ingrid; Knöbl, Paul N; von Krogh, Anne Sophie; Schneppenheim, Reinhard; Aebi-Huber, Isabella; Bütikofer, Lukas; Largiadèr, Carlo R; Cermakova, Zuzana; Kokame, Koichi; Miyata, Toshiyuki; Yagi, Hideo; Terrell, Deirdra R; Vesely, Sara K; Matsumoto, Masanori; Lämmle, Bernhard; Fujimura, Yoshihiro; Kremer Hovinga, Johanna A.
Affiliation
  • van Dorland HA; Department of Hematology and Central Hematology Laboratory, Inselspital, Bern University Hospital, Bern, Switzerland.
  • Taleghani MM; Department for BioMedical Research, University of Bern, Bern, Switzerland.
  • Sakai K; Department of Hematology and Central Hematology Laboratory, Inselspital, Bern University Hospital, Bern, Switzerland.
  • Friedman KD; Department of Blood Transfusion Medicine, Nara Medical University, Kashihara, Japan.
  • George JN; Division of Hematology and Oncology, Medical College of Wisconsin, Milwaukee, WI, USA.
  • Hrachovinova I; Department of Biostatistics Epidemiology, University of Oklahoma Health Sciences Center, Oklahoma City, OK, USA.
  • Knöbl PN; NRL for Hemostasis, Institute of Hematology and Blood Transfusion, Prague, Czech Republic.
  • von Krogh AS; Division of Hematology and Hemostasis, Department of Medicine 1, Medical University of Vienna, Austria.
  • Schneppenheim R; Department of Hematology, St Olavs Hospital, Trondheim University Hospital, Trondheim, Norway.
  • Aebi-Huber I; Department of Paediatric Haematology and Oncology, University Medical Centre Hamburg-Eppendorf, Hamburg, Germany.
  • Bütikofer L; Department of Hematology and Central Hematology Laboratory, Inselspital, Bern University Hospital, Bern, Switzerland.
  • Largiadèr CR; Department for BioMedical Research, University of Bern, Bern, Switzerland.
  • Cermakova Z; CTU Bern, University of Bern, Bern, Switzerland.
  • Kokame K; University Institute of Clinical Chemistry, Inselspital, Bern University Hospital, Bern, Switzerland.
  • Miyata T; Blood Center, University Hospital Ostrava, Ostrava, Czech Republic.
  • Yagi H; Department of Molecular Pathogenesis, National Cerebral and Cardiovascular Center, Suita, Japan.
  • Terrell DR; Department of Molecular Pathogenesis, National Cerebral and Cardiovascular Center, Suita, Japan.
  • Vesely SK; Department of Cerebrovascular Medicine, National Cerebral and Cardiovascular Center, Suita, Japan.
  • Matsumoto M; Department of Blood Transfusion Medicine, Nara Medical University, Kashihara, Japan.
  • Lämmle B; Department of Hematology, Nara Prefecture General Medical Center, Nara, Japan.
  • Fujimura Y; Department of Biostatistics Epidemiology, University of Oklahoma Health Sciences Center, Oklahoma City, OK, USA.
  • Kremer Hovinga JA; Department of Biostatistics Epidemiology, University of Oklahoma Health Sciences Center, Oklahoma City, OK, USA.
Haematologica ; 104(10): 2107-2115, 2019 10.
Article in En | MEDLINE | ID: mdl-30792199
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Purpura, Thrombotic Thrombocytopenic / Alleles / ADAMTS13 Protein / Heterozygote / Homozygote / Mutation Type of study: Clinical_trials / Diagnostic_studies / Prognostic_studies Limits: Adolescent / Adult / Aged / Child / Child, preschool / Female / Humans / Infant / Male / Middle aged Language: En Journal: Haematologica Year: 2019 Document type: Article Affiliation country: Switzerland Country of publication: Italy
Fulltext
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Purpura, Thrombotic Thrombocytopenic / Alleles / ADAMTS13 Protein / Heterozygote / Homozygote / Mutation Type of study: Clinical_trials / Diagnostic_studies / Prognostic_studies Limits: Adolescent / Adult / Aged / Child / Child, preschool / Female / Humans / Infant / Male / Middle aged Language: En Journal: Haematologica Year: 2019 Document type: Article Affiliation country: Switzerland Country of publication: Italy