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Establishing a Multi-Country Sickle Cell Disease Registry in Africa: Ethical Considerations.
Munung, Nchangwi Syntia; Nembaware, Victoria; de Vries, Jantina; Bukini, Daima; Tluway, Furahini; Treadwell, Marsha; Sangeda, Raphael Zozimus; Mazandu, Gaston; Jonas, Mario; Paintsil, Vivian; Nnodu, Obiageli E; Balandya, Emmanuel; Makani, Julie; Wonkam, Ambroise.
Affiliation
  • Munung NS; Department of Medicine, University of Cape Town, Cape Town, South Africa.
  • Nembaware V; SickleInAfrica Data Coordinating Centre (SADaCC), University of Cape Town, Cape Town, South Africa.
  • de Vries J; SickleInAfrica Data Coordinating Centre (SADaCC), University of Cape Town, Cape Town, South Africa.
  • Bukini D; Division of Human Genetics, University of Cape Town, Cape Town, South Africa.
  • Tluway F; Department of Medicine, University of Cape Town, Cape Town, South Africa.
  • Treadwell M; Sickle Cell Programme, Muhimbili University of Health and Allied Sciences, Dar-es-Salaam, Tanzania.
  • Sangeda RZ; Sickle Cell Programme, Muhimbili University of Health and Allied Sciences, Dar-es-Salaam, Tanzania.
  • Mazandu G; Department of Hematology/Oncology, UCSF Benioff Children's Hospital Oakland, California, United States.
  • Jonas M; Department of Pediatrics, UCSF School of Medicine, California, United States.
  • Paintsil V; Sickle Cell Programme, Muhimbili University of Health and Allied Sciences, Dar-es-Salaam, Tanzania.
  • Nnodu OE; Department of Pharmaceutical Microbiology, Muhimbili University of Health and Allied Sciences, Dar es Salaam, Tanzania.
  • Balandya E; SickleInAfrica Data Coordinating Centre (SADaCC), University of Cape Town, Cape Town, South Africa.
  • Makani J; Division of Human Genetics, University of Cape Town, Cape Town, South Africa.
  • Wonkam A; SickleInAfrica Data Coordinating Centre (SADaCC), University of Cape Town, Cape Town, South Africa.
Front Genet ; 10: 943, 2019.
Article in En | MEDLINE | ID: mdl-31649726
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Full text: 1 Collection: 01-internacional Database: MEDLINE Aspects: Ethics Language: En Journal: Front Genet Year: 2019 Document type: Article Affiliation country: South Africa Country of publication: Switzerland
Fulltext
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Full text: 1 Collection: 01-internacional Database: MEDLINE Aspects: Ethics Language: En Journal: Front Genet Year: 2019 Document type: Article Affiliation country: South Africa Country of publication: Switzerland