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Growing up with a rare genetic disease: an interpretative phenomenological analysis of living with Holt-Oram syndrome.
Brugallé, Elodie; Antoine, Pascal; Geerts, Laura; Bellengier, Laurence; Manouvrier-Hanu, Sylvie; Fantini-Hauwel, Carole.
Affiliation
  • Brugallé E; UMR 9193 - SCALab - Sciences Cognitives et Sciences Affectives, CNRS, University of Lille, Villeneuve d'Ascq, France.
  • Antoine P; UMR 9193 - SCALab - Sciences Cognitives et Sciences Affectives, CNRS, University of Lille, Villeneuve d'Ascq, France.
  • Geerts L; Center of Clinical Psychology, Psychopathology and Psychosomatic Research, Université Libre de Bruxelles, Bruxelles, Belgique.
  • Bellengier L; EA 7364 - RADEME - Maladies RAres du Développement et du Métabolisme: du phénotype au génotype et à la Fonction, University of Lille, Lille, France.
  • Manouvrier-Hanu S; EA 7364 - RADEME - Maladies RAres du Développement et du Métabolisme: du phénotype au génotype et à la Fonction, University of Lille, Lille, France.
  • Fantini-Hauwel C; Clinique de Génétique médicale Guy Fontaine et Centre de référence maladies rares pour les anomalies du développement Nord-Ouest, CHU de Lille, Lille, France.
Disabil Rehabil ; 43(16): 2304-2311, 2021 08.
Article in En | MEDLINE | ID: mdl-31786957
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Lower Extremity Deformities, Congenital / Upper Extremity Deformities, Congenital / Heart Defects, Congenital / Heart Septal Defects, Atrial Type of study: Qualitative_research Limits: Adolescent / Adult / Child / Female / Humans / Male Language: En Journal: Disabil Rehabil Journal subject: REABILITACAO Year: 2021 Document type: Article Affiliation country: France
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Lower Extremity Deformities, Congenital / Upper Extremity Deformities, Congenital / Heart Defects, Congenital / Heart Septal Defects, Atrial Type of study: Qualitative_research Limits: Adolescent / Adult / Child / Female / Humans / Male Language: En Journal: Disabil Rehabil Journal subject: REABILITACAO Year: 2021 Document type: Article Affiliation country: France