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Standardised clinical data from patients with primary ciliary dyskinesia: FOLLOW-PCD.
Goutaki, Myrofora; Papon, Jean-François; Boon, Mieke; Casaulta, Carmen; Eber, Ernst; Escudier, Estelle; Halbeisen, Florian S; Harris, Amanda; Hogg, Claire; Honore, Isabelle; Jung, Andreas; Karadag, Bulent; Koerner-Rettberg, Cordula; Legendre, Marie; Maitre, Bernard; Nielsen, Kim G; Rubbo, Bruna; Rumman, Nisreen; Schofield, Lynne; Shoemark, Amelia; Thouvenin, Guillaume; Willkins, Hannah; Lucas, Jane S; Kuehni, Claudia E.
Affiliation
  • Goutaki M; Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland.
  • Papon JF; Paediatric Respiratory Medicine, Children's University Hospital of Bern, University of Bern, Bern, Switzerland.
  • Boon M; AP-HP, Hôpital Kremlin-Bicetre, Service d'ORL et de Chirurgie Cervico-Faciale, Le Kremlin-Bicêtre, France.
  • Casaulta C; Faculté de Médecine, Université Paris-Saclay, Le Kremlin-Bicêtre, France.
  • Eber E; INSERM, U955, Créteil, France.
  • Escudier E; CNRS, ERL 7240, Créteil, France.
  • Halbeisen FS; Dept of Paediatrics, University Hospital Gasthuisberg, Leuven, Belgium.
  • Harris A; Paediatric Respiratory Medicine, Children's University Hospital of Bern, University of Bern, Bern, Switzerland.
  • Hogg C; Division of Paediatric Pulmonology and Allergology, Dept of Paediatrics and Adolescent Medicine, Medical University of Graz, Graz, Austria.
  • Honore I; Service de Génétique et Embryologie Médicales, Hôpital Armand-Trousseau, Assistance Publique-Hôpitaux de Paris, Paris, France.
  • Jung A; Institute of Social and Preventive Medicine, University of Bern, Bern, Switzerland.
  • Karadag B; Primary Ciliary Dyskinesia Centre, NIHR Respiratory Biomedical Research Centre, University of Southampton, Southampton, UK.
  • Koerner-Rettberg C; Primary Ciliary Dyskinesia Centre, Royal Brompton and Harefield Foundation Trust, London, UK.
  • Legendre M; Assistance Publique-Hôpitaux de Paris, Hôpital Cochin, Service de Pneumologie, Paris, France.
  • Maitre B; Division of Respiratory Medicine, University Children's Hospital of Zurich, Zurich, Switzerland.
  • Nielsen KG; Dept of Pediatric Pulmonology, Marmara University, School of Medicine, Istanbul, Turkey.
  • Rubbo B; Dept of Paediatric Pneumology, University Children's Hospital of Ruhr University Bochum, Bochum, Germany.
  • Rumman N; Service de Génétique et Embryologie Médicales, Hôpital Armand-Trousseau, Assistance Publique-Hôpitaux de Paris, Paris, France.
  • Schofield L; Centre Hospitalier Intercommunal de Créteil, Service de Pneumologie et de Pathologie Professionnelle, DHU A-TVB, Université Paris Est-Créteil, Créteil, France.
  • Shoemark A; INSERM U955, Institut Mondor de Recherche Biomédicale (IMRB) Equipe 04, Créteil, France.
  • Thouvenin G; Danish PCD Centre Copenhagen, Paediatric Pulmonary Service, Copenhagen University Hospital, Copenhagen, Denmark.
  • Willkins H; Primary Ciliary Dyskinesia Centre, NIHR Respiratory Biomedical Research Centre, University of Southampton, Southampton, UK.
  • Lucas JS; Al-Quds University, Faculty of Medicine, East Jerusalem, Palestine.
  • Kuehni CE; Leeds Teaching Hospital NHS Foundation Trust Leeds, Leeds, UK.
ERJ Open Res ; 6(1)2020 Jan.
Article in En | MEDLINE | ID: mdl-32055632
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Full text: 1 Collection: 01-internacional Database: MEDLINE Type of study: Guideline / Prognostic_studies Language: En Journal: ERJ Open Res Year: 2020 Document type: Article Affiliation country: Switzerland Country of publication: United kingdom
Fulltext
Add to My VHL
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Full text: 1 Collection: 01-internacional Database: MEDLINE Type of study: Guideline / Prognostic_studies Language: En Journal: ERJ Open Res Year: 2020 Document type: Article Affiliation country: Switzerland Country of publication: United kingdom