Consulting with a folk deity before making decisions: spiritual practices in parents facing end-of-life decisions for their child on life support with brain stem dysfunction.
Int J Qual Stud Health Well-being
; 15(1): 1756686, 2020 Dec.
Article
in En
| MEDLINE
| ID: mdl-32340564
ABSTRACT
Background:
Adolescents with brain stem dysfunction may undergo many invasive treatments, and parents are often faced with making the decision to withdraw treatment. However, in the face of their child's death, the spiritual practices of parents dealing with end-of-life decision-making remain under investigated.Purpose:
This study explores the spiritual practices in parents making end-of-life decisions for adolescents on life support with brain stem dysfunction.Method:
A descriptive phenomenological study was conducted through in-depth interviews with three parents of two adolescents in Taiwan. Data were analysed using Colaizzi's seven-step protocol.Results:
Three main themes emerged (1) faith during decision-making, (2) struggles during decision-making, (3) transformation during decision-making. The findings indicate that "transforming the nature of hope" is the essence of the experience.Conclusion:
Family-centred care, gaining insight into parental spiritual practices, and developing culturally-appropriate care are recommended.Key words
Full text:
1
Collection:
01-internacional
Database:
MEDLINE
Main subject:
Parents
/
Terminal Care
/
Spirituality
/
Decision Making
Type of study:
Diagnostic_studies
/
Guideline
/
Prognostic_studies
/
Qualitative_research
Limits:
Adolescent
/
Adult
/
Female
/
Humans
/
Male
/
Middle aged
Country/Region as subject:
Asia
Language:
En
Journal:
Int J Qual Stud Health Well-being
Year:
2020
Document type:
Article
Affiliation country:
Taiwan