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Responsiveness to change over time and test-retest reliability of the PROMIS and Neuro-QoL mental health measures in persons with Huntington disease (HD).
Carlozzi, Noelle E; Boileau, Nicholas R; Roché, Matthew W; Ready, Rebecca E; Perlmutter, Joel S; Chou, Kelvin L; Barton, Stacey K; McCormack, Michael K; Stout, Julie C; Cella, David; Miner, Jennifer A; Paulsen, Jane S.
Affiliation
  • Carlozzi NE; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA. carlozzi@med.umich.edu.
  • Boileau NR; Department of Physical Medicine & Rehabilitation, University of Michigan, North Campus Research Complex, 2800 Plymouth Road, Building NCRC B14, Room G213, Ann Arbor, MI, 48109-2800, USA. carlozzi@med.umich.edu.
  • Roché MW; Department of Physical Medicine and Rehabilitation, University of Michigan, Ann Arbor, MI, USA.
  • Ready RE; CHDI Management/CHDI Foundation, Princeton, NJ, USA.
  • Perlmutter JS; Department of Psychology, New Jersey City University, Jersey City, NJ, USA.
  • Chou KL; Psychological and Brain Sciences, University of Massachusetts, Amherst, MA, USA.
  • Barton SK; Department of Neurology, Washington University in St. Louis, St. Louis, MO, USA.
  • McCormack MK; Department of Radiology, Neuroscience, Physical Therapy, and Occupational Therapy, Washington University in St. Louis, St. Louis, MO, USA.
  • Stout JC; Department of Neurology, University of Michigan, Ann Arbor, MI, USA.
  • Cella D; Department of Neurology, Washington University in St. Louis, St. Louis, MO, USA.
  • Miner JA; Department of Pathology, Rowan University - SOM, Stratford, NJ, USA.
  • Paulsen JS; Department of Psychiatry, Rutgers University, RWJMS, Piscataway, NJ, USA.
Qual Life Res ; 29(12): 3419-3439, 2020 Dec.
Article in En | MEDLINE | ID: mdl-32813263

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Quality of Life / Mental Health / Huntington Disease / Patient Reported Outcome Measures Type of study: Prognostic_studies Aspects: Patient_preference Limits: Adult / Female / Humans / Male / Middle aged Language: En Journal: Qual Life Res Journal subject: REABILITACAO / TERAPEUTICA Year: 2020 Document type: Article Affiliation country: United States Country of publication: Netherlands

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Quality of Life / Mental Health / Huntington Disease / Patient Reported Outcome Measures Type of study: Prognostic_studies Aspects: Patient_preference Limits: Adult / Female / Humans / Male / Middle aged Language: En Journal: Qual Life Res Journal subject: REABILITACAO / TERAPEUTICA Year: 2020 Document type: Article Affiliation country: United States Country of publication: Netherlands