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Development of a patient-reported outcome questionnaire for aplastic anemia and paroxysmal nocturnal hemoglobinuria (PRO-AA/PNH).
Weisshaar, Kimmo; Ewald, Hannah; Halter, Jörg; Gerull, Sabine; Schönfeld, Sandra; Senft, Yuliya; Martinez, Maria; Leuppi-Taegtmeyer, Anne; Khanna, Nina; Maier, Birgit; Risitano, Antonio; Peffault de Latour, Regis; Tichelli, Andre; Passweg, Jakob; Drexler, Beatrice.
Affiliation
  • Weisshaar K; Division of Hematology, University Hospital Basel, 4031, Basel, Switzerland.
  • Ewald H; University Medical Library, University of Basel, 4051, Basel, Switzerland.
  • Halter J; Basel Institute for Clinical Epidemiology and Biostatistics, Department of Clinical Research, University Hospital Basel, 4031, Basel, Switzerland.
  • Gerull S; Division of Hematology, University Hospital Basel, 4031, Basel, Switzerland.
  • Schönfeld S; Division of Hematology, University Hospital Basel, 4031, Basel, Switzerland.
  • Senft Y; Division of Hematology, University Hospital Basel, 4031, Basel, Switzerland.
  • Martinez M; Division of Hematology, University Hospital Basel, 4031, Basel, Switzerland.
  • Leuppi-Taegtmeyer A; Department of Diagnostic Hematology, University of Basel, 4051, Basel, Switzerland.
  • Khanna N; Department of Clinical Pharmacology and Toxicology, University and University Hospital Basel, 4051, Basel, Switzerland.
  • Maier B; Infectious Diseases and Hospital Epidemiology, University Hospital Basel, 4031, Basel, Switzerland.
  • Risitano A; Department of Psychosomatic Medicine, University Hospital Basel, 4031, Basel, Switzerland.
  • Peffault de Latour R; Hematology, Department of Clinical Medicine and Surgery, Federico II University of Naples, Naples, Italy.
  • Tichelli A; Severe Aplastic Anemia Working Party of the European Group for Blood and Marrow Transplantation, Leiden, Netherlands.
  • Passweg J; Severe Aplastic Anemia Working Party of the European Group for Blood and Marrow Transplantation, Leiden, Netherlands.
  • Drexler B; French Reference Center for Aplastic Anemia and Paroxysmal Nocturnal Hemoglobinuria, Saint Louis Hospital and University Paris Diderot, Paris, France.
Orphanet J Rare Dis ; 15(1): 249, 2020 09 17.
Article in En | MEDLINE | ID: mdl-32943103
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Patient Reported Outcome Measures / Hemoglobinuria, Paroxysmal / Anemia, Aplastic Type of study: Observational_studies / Prognostic_studies / Risk_factors_studies Aspects: Patient_preference Limits: Humans Language: En Journal: Orphanet J Rare Dis Journal subject: MEDICINA Year: 2020 Document type: Article Affiliation country: Switzerland Country of publication: United kingdom
Fulltext
Add to My VHL
Print
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PubMed Links
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Patient Reported Outcome Measures / Hemoglobinuria, Paroxysmal / Anemia, Aplastic Type of study: Observational_studies / Prognostic_studies / Risk_factors_studies Aspects: Patient_preference Limits: Humans Language: En Journal: Orphanet J Rare Dis Journal subject: MEDICINA Year: 2020 Document type: Article Affiliation country: Switzerland Country of publication: United kingdom