A minimum data set for traumatic brain injuries in Iran.
Chin J Traumatol
; 25(5): 283-292, 2022 Sep.
Article
in En
| MEDLINE
| ID: mdl-34690039
ABSTRACT
PURPOSE:
Traumatic brain injury (TBI) is one of the major public health concerns worldwide. Developing a TBI registry could facilitate characterizing TBI, monitoring the quality of care, and quantifying the burden of TBI by collecting comparable and standardized epidemiological and clinical data. However, a national standard tool for data collection of the TBI registry has not been developed in Iran yet. This study aimed to develop a national minimum data set (MDS) for a hospital-based registry of patients suffering from TBI in Iran.METHODS:
The MDS was designed in 2 phases, including a literature review and a Delphi study with content validation by an expert panel. After the literature review, a comprehensive list of administrative and clinical items was obtained. Through a two-round e-Delphi approach conducted by invited experts with clinical and research experience in the field of TBI, the final data elements were selected.RESULTS:
A MDS of TBI was assigned to 2 parts administrative part with 5 categories including 52 data elements, and clinical part with 9 categories including 130 data elements.CONCLUSION:
For the first time in Iran, we developed a MDS specified for TBI consisting of 182 data elements. The MDS would facilitate implementing a TBI's national level registry and providing essential, comparable and standardized information.Key words
Full text:
1
Collection:
01-internacional
Database:
MEDLINE
Main subject:
Brain Injuries, Traumatic
Limits:
Humans
Country/Region as subject:
Asia
Language:
En
Journal:
Chin J Traumatol
Journal subject:
TRAUMATOLOGIA
Year:
2022
Document type:
Article
Affiliation country:
Iran