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The Lived Experience of Parents' Receiving the Diagnosis of CDKL5 Deficiency Disorder for Their Child.
Demarest, Scott; Marsh, Rebekah; Treat, Lauren; Fisher, Michael P; Dempsey, Amanda; Junaid, Mohammed; Downs, Jenny; Leonard, Helen; Benke, Tim; Morris, Megan A.
Affiliation
  • Demarest S; Adult and Child Consortium for Health Outcomes Research Science, University of Colorado.
  • Marsh R; Department of Pediatrics, University of Colorado.
  • Treat L; 2932Children's Hospital Colorado.
  • Fisher MP; Adult and Child Consortium for Health Outcomes Research Science, University of Colorado.
  • Dempsey A; Department of Pediatrics, University of Colorado.
  • Junaid M; 2932Children's Hospital Colorado.
  • Downs J; Department of Health Sciences, 1492Towson University, Towson, MD, USA.
  • Leonard H; Adult and Child Consortium for Health Outcomes Research Science, University of Colorado.
  • Benke T; Department of Pediatrics, University of Colorado.
  • Morris MA; 2932Children's Hospital Colorado.
J Child Neurol ; 37(6): 451-460, 2022 05.
Article in En | MEDLINE | ID: mdl-35196159
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Spasms, Infantile / Epileptic Syndromes Type of study: Diagnostic_studies / Prognostic_studies / Qualitative_research / Risk_factors_studies Aspects: Patient_preference Limits: Adolescent / Child / Humans Language: En Journal: J Child Neurol Journal subject: NEUROLOGIA / PEDIATRIA Year: 2022 Document type: Article Country of publication: United States
Fulltext
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Spasms, Infantile / Epileptic Syndromes Type of study: Diagnostic_studies / Prognostic_studies / Qualitative_research / Risk_factors_studies Aspects: Patient_preference Limits: Adolescent / Child / Humans Language: En Journal: J Child Neurol Journal subject: NEUROLOGIA / PEDIATRIA Year: 2022 Document type: Article Country of publication: United States