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Parental experiences of having a child with CLN3 disease (juvenile Batten disease) and how these experiences relate to family resilience.
Krantz, Mattias; Malm, Emma; Darin, Niklas; Sofou, Kalliopi; Savvidou, Antri; Reilly, Colin; Boström, Petra.
Affiliation
  • Krantz M; Department of Psychology, University of Gothenburg, Gothenburg, Sweden.
  • Malm E; Department of Psychology, University of Gothenburg, Gothenburg, Sweden.
  • Darin N; Department of Pediatrics, Institute of Clinical Sciences, University of Gothenburg, Gothenburg, Sweden.
  • Sofou K; Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden.
  • Savvidou A; Department of Pediatrics, Institute of Clinical Sciences, University of Gothenburg, Gothenburg, Sweden.
  • Reilly C; Queen Silvia Children's Hospital, Sahlgrenska University Hospital, Gothenburg, Sweden.
  • Boström P; Department of Pediatrics, Institute of Clinical Sciences, University of Gothenburg, Gothenburg, Sweden.
Child Care Health Dev ; 48(5): 842-851, 2022 09.
Article in En | MEDLINE | ID: mdl-35233790
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Resilience, Psychological / Neuronal Ceroid-Lipofuscinoses Type of study: Qualitative_research Limits: Adult / Child / Female / Humans Language: En Journal: Child Care Health Dev Year: 2022 Document type: Article Affiliation country: Sweden Country of publication: United kingdom
Fulltext
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Print
XML
PubMed Links
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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Resilience, Psychological / Neuronal Ceroid-Lipofuscinoses Type of study: Qualitative_research Limits: Adult / Child / Female / Humans Language: En Journal: Child Care Health Dev Year: 2022 Document type: Article Affiliation country: Sweden Country of publication: United kingdom