View from inside: Patient advocacy in guiding policy development for metabolic disorders. | J Inherit Metab Dis;45(5): 866-871, 2022 09. | MEDLINE

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View from inside: Patient advocacy in guiding policy development for metabolic disorders.

Millis, Nicole.

Affiliation

Millis N; Rare Voices Australia, Mentone, Australia.

J Inherit Metab Dis ; 45(5): 866-871, 2022 09.

Article in En | MEDLINE | ID: mdl-35737652

Subject(s)

Metabolic Diseases; Patient Advocacy; Humans; Policy Making

Key words

National Strategic Action Plan for Rare Disease; advocacy; advocating for better health outcomes; policy reform; rare disease

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Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Patient Advocacy / Metabolic Diseases Limits: Humans Language: En Journal: J Inherit Metab Dis Year: 2022 Document type: Article Affiliation country: Australia

Search on Google

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Patient Advocacy / Metabolic Diseases Limits: Humans Language: En Journal: J Inherit Metab Dis Year: 2022 Document type: Article Affiliation country: Australia