Your browser doesn't support javascript.
loading
Pediatric to Adult Transition Literature: Scoping Review and Rheumatology Research Prioritization Survey Results.
Bitencourt, Nicole; Lawson, Erica; Bridges, John; Carandang, Kristine; Chintagunta, Ela; Chiraseveenuprapund, Peter; DeQuattro, Kimberly; Goh, Y Ingrid; Lee, Tzielan C; Moore, Katharine F; Peterson, Rosemary G; Roberts, Jordan E; Ronis, Tova; Sadun, Rebecca E; Smitherman, Emily A; Stringer, Elizabeth; White, Patience H; Chang, Joyce C.
Affiliation
  • Bitencourt N; N. Bitencourt, MD, Department of Pediatrics, Loma Linda University Medical Center, Loma Linda, California, USA; Nicole_Bitencourt@yahoo.com.
  • Lawson E; E. Lawson, MD, Department of Pediatrics, University of California San Francisco Medical Center, San Francisco, California, USA.
  • Bridges J; J. Bridges, MD, MS, Division of Pediatric Rheumatology/Division of Clinical Immunology and Rheumatology, University of Alabama at Birmingham, Birmingham, Alabama, USA.
  • Carandang K; K. Carandang, PhD, OTR/L, Patients' Autoimmune Research & Empowerment Alliance, University of Wisconsin-River Falls, River Falls, Wisconsin, USA.
  • Chintagunta E; E. Chintagunta, Patient Partner, Childhood Arthritis Rheumatology Research Alliance, Washington, DC, USA.
  • Chiraseveenuprapund P; P. Chiraseveenuprapund, MD, Department of Pediatrics, Division of Allergy, Immunology, Rheumatology, and Kawasaki Disease, University of California, San Diego, San Diego, California, USA.
  • DeQuattro K; K. DeQuattro, MD, MM, Department of Medicine, Division of Rheumatology, University of Pennsylvania Health Systems, Philadelphia, Pennsylvania, USA.
  • Goh YI; Y.I. Goh, PhD, Division of Rheumatology, The Hospital for Sick Children; Child Health Evaluative Services, SickKids Research Institute, Toronto, Ontario, Canada.
  • Lee TC; T.C. Lee, MD, Pediatric Rheumatology, Stanford University School of Medicine, Stanford, California, USA.
  • Moore KF; K.F. Moore, MD, Section of Pediatric Rheumatology, Children's Hospital Colorado, University of Colorado School of Medicine, Aurora, Colorado, USA.
  • Peterson RG; R.G. Peterson, MD, MSCE, Department of Pediatrics, Division of Pediatric Rheumatology, Dell Medical School at UT Austin, Austin, Texas, USA.
  • Roberts JE; J.E. Roberts, MD, J.C. Chang, MD, MSCE, Division of Immunology, Department of Pediatrics, Harvard Medical School, Boston Children's Hospital, Boston, Massachusetts, USA.
  • Ronis T; T. Ronis, MDCM, Pediatric Rheumatology, Children's National Hospital, Department of Pediatrics, George Washington University, Washington DC, USA.
  • Sadun RE; R.E. Sadun, MD, PhD, Department of Pediatric and Department of Medicine, Duke University Medical Center, Durham, North Carolina, USA.
  • Smitherman EA; E.A. Smitherman, MD, MS, Department of Pediatrics, Division of Pediatric Rheumatology, University of Alabama at Birmingham, Birmingham, Alabama, USA.
  • Stringer E; E. Stringer, MD, MSc, FRCPC, Associate Professor of Pediatrics, IWK Health, Dalhousie University, Halifax, Nova Scotia, Canada.
  • White PH; P.H. White, MD, MA, Got Transition National Center, National Alliance to Advance Adolescent Health, Division of Rheumatology, George Washington University School of Medicine and Health Sciences, Washington, DC, USA.
  • Chang JC; J.E. Roberts, MD, J.C. Chang, MD, MSCE, Division of Immunology, Department of Pediatrics, Harvard Medical School, Boston Children's Hospital, Boston, Massachusetts, USA.
J Rheumatol ; 49(11): 1201-1213, 2022 11.
Article in En | MEDLINE | ID: mdl-35914787
ABSTRACT
The transition from pediatric to adult care is the focus of growing research. It is important to identify how to direct future research efforts for maximum effect. Our goals were to perform a scoping review of the transition literature, highlight gaps in transition research, and offer stakeholder guidance on the importance and feasibility of research questions designed to fill identified gaps. The transition literature on rheumatic diseases and other common pediatric-onset chronic diseases was grouped and summarized. Based on the findings, a survey was developed and disseminated to pediatric rheumatologists and young adults with rheumatic diseases as well as their caregivers. The transitional care needs of patients, healthcare teams, and caregivers is well described in the literature. While various transition readiness scales exist, no longitudinal posttransfer study confirms their predictive validity. Multiple outcome measures are used alone or in combination to define a successful transition or intervention. Multimodal interventions are most effective at improving transition-related outcomes. How broader health policy affects transition is poorly studied. Research questions that ranked highest for importance and feasibility included those related to identifying and tracking persons with psychosocial vulnerabilities or other risk factors for poor outcomes. Interventions surrounding improving self-efficacy and health literacy were also ranked highly. In contrast to healthcare teams (n = 107), young adults/caregivers (n = 23) prioritized research surrounding improved work, school, or social function. The relevant transition literature is summarized and future research questions prioritized, including the creation of processes to identify and support young adults vulnerable to poor outcomes.
Subject(s)
Key words
Fulltext
Add to My VHL
Print
XML
PubMed Links
Search on Google

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Rheumatology / Rheumatic Diseases / Transition to Adult Care Type of study: Prognostic_studies / Risk_factors_studies / Systematic_reviews Limits: Adult / Child / Humans Language: En Journal: J Rheumatol Year: 2022 Document type: Article
Fulltext
Add to My VHL
Print
XML
PubMed Links
Search on Google

Full text: 1 Collection: 01-internacional Database: MEDLINE Main subject: Rheumatology / Rheumatic Diseases / Transition to Adult Care Type of study: Prognostic_studies / Risk_factors_studies / Systematic_reviews Limits: Adult / Child / Humans Language: En Journal: J Rheumatol Year: 2022 Document type: Article